Why I am here

[Guest guest]

> Andy spends his time on this list out of respect for all the parents

> trying to help their children.

This is pretty much true.

I have a lot of liking and respect for people who make their own

decisions by thinking things through as best they can and take

personal responsibility to do something based on their conclusions.

I find this almost entirely lacking in modern life so I am glad to

spend time on this list helping the kind of people I admire whom it

turns out I can help.

And in addition I have a lot of appreciation for how bad the kid's

situation is, and how little chance they have of it improving unless

they have parents willing to figure it out on their own, despite

social pressure not to, and do the right thing as best they can.

With the rare exception like Moe, you are all wonderful people and I

am glad that by chance I ended up in a position where I could help.

Andy . . . . . . . . . . . . . .

[Guest guest]

I joined some time ago because of this section on the main

page: " members develop a positive quality of life, provide

affirmation, encouragement, inspiration, HOPE, empowerment, and

practical suggestions. We share information gathered from the medical

community but MOST IMPORTANTLY we share personal discoveries and

insights that we've gained from living with CMT. " I am also here

because I have two asymptomatic Type X daughters who may benefit from

the new research Gretchen supplies us with.

I was in other online groups, but when I saw this, it appealed to me.

Yes, I was diagnosed as a child, early in my life with Type X. This

was before the Internet Age, but we have a clear family history;

although nothing had been done. It was really my grandfather who

taught me that my brain needed to listen to positive thought. (He had

a name for it, which I don't remember) Later, I had a buddy (polio

survivor) who had the same type of life philosophy and helped me

overcome my negativity about " my unknown and uncertain " life.

Since coming to I have learned much about how CMT affects each

of you. I am very appreciative for and Gretchen's idea for

starting it.

Just wanted to say to Gretchen how much the girls and I appreciated

the holiday message and all your efforts you put into this group. We

have benefitted very much.

Seasons Greetings to all,

, Hannah and Hayley

[Guest guest]

In a message dated 6/4/2007 10:38:02 P.M. Eastern Daylight Time, dragnfli50@... writes:

i have fibromyalgia, myofascial pain syndrome,shingles,extreme colitus and ibs, coronary artery disease and diabetes, i've had all this since1996. I am in west Texas, Abilene but had been living in San Angelo, Tx. for the last 29 years, and i want to go back, my kids are there i'll write more later nice to be aboard.. paulette

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."See what's free at AOL.com.

i have fibromyalgia, myofascial pain syndrome,shingles,extreme colitus and ibs, coronary artery disease and diabetes, i've had all this since1996. I am in west Texas, Abilene but had been living in San Angelo, Tx. for the last 29 years, and i want to go back, my kids are there i'll write more later nice to be aboard.. paulette

Got a little couch potato?

Check out fun summer activities for kids.