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Carol,

My daughter had quite a lot of improvement when we began giving her

Prozac about a year ago. I have her at a very low dose while chelating (2.5

mg) - not wanting to take her off completely because I've heard if you take

them off and then later, put them back on, it often will not work for them.

Don't ask me why. Temple Grandin wrote a paper about medications that

includes SSRI's on the autism website that partners with the autism research

institute - Edelson's website up in Oregon. I've also read though that they

burden the liver so you may want to try chelation first and see if the

Zoloft is necessary afterwards.

[ ] Zoloft

> We went to the neurologist today and it was not as bad as I expected. I

> didn't elaborate much on the mercury thing, as I didn't see the point.

> Anyway he thinks Hunter's problems stem from anxiety (anxiety and

depression

> do run in my family). He wants to try Hunter on Zoloft. Do any of you

have

> any experiences to share, good or bad? We have an appt with our chelation

> doc tomorrow and I will discuss this with him. Of course I am wondering

if I

> can do them together. Any thoughts?

>

> Carol G

>

>

>

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Drugs are mainly to treat symptoms and have pretty much never cured

anything. They don't treat the cause of the problem. Try as best

you can to stick with the treatment of the cause - that doesn't mean

that you never use them but recognise what you are doing and I don't

think you will use them very often.

Zoloft is a powerful drug and does many things, some of which are

what you want but most of which are bad for the long term recovery of

the person. All drugs do more than one thing - the drug company

chooses the one thing they want and test for it - they call the rest

" side effects " . Mercury and toxicity probably run in your family,

not anxiety and depression - they are merely the symptoms of the

problem. Good luck KenG

> We went to the neurologist today and it was not as bad as I

expected. I

> didn't elaborate much on the mercury thing, as I didn't see the

point.

> Anyway he thinks Hunter's problems stem from anxiety (anxiety and

depression

> do run in my family). He wants to try Hunter on Zoloft. Do any of

you have

> any experiences to share, good or bad? We have an appt with our

chelation

> doc tomorrow and I will discuss this with him. Of course I am

wondering if I

> can do them together. Any thoughts?

>

> Carol G

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PLeasse read up about Adderall and any drug before you use it. They

aren't any better tested on children than the vaccinations we are

blaming for so many of our kids problems. They have terrible

so-called " side effects " ? Increasing from 75mg to 200 mg is a big

jump? how old? Weight? Days on/off?

Also, don't let your son's school effectively " prescribe " by

complaining enough - their weaknesses at being able to teach your son

should not be cause for potentially making him into a drug addict!

Sorry, just my thoughts! Good luck and much love to you all, KenG

--- In egroups, stephanie nickolson <snickol@J...>

wrote:

> We have an appointment with a neurologist thursday also for our 6

year

> old son. We've just finished round 4 of chelation and I am not

seeing

> really any good changes. We went from 75mg DMSA to 200mg this last

time.

> I want to talk to the doctor about Adderrall and/or Depakote for

our son.

> I know I should be patient and wait for chelation results (hair and

> urine) before trying meds but he is driving us crazy with mood

swings and

> school telling us he's " not focusing " !! Does anyone have experience

with

> either of these meds while chelating?? Please advise.

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

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Hi ,

I have two daughters on Depakene for almost a year now.

We are just starting chelation. I asked my very conservative

neurologist if this was okay. Chemet and Depakene. He said it was

perfectly safe but he was not going interestd in chelation with his

patients at this time. We went to a DAN physician

for the Chemet. My neurologist suggested both Adderal and Depakene.

I chose just the Depakene with acceptable results. I don't believe

in any more medication than necessary but both my daughters showed

seizure activity on their EEGs.

a

In egroups, stephanie nickolson <snickol@J...>

wrote:

> We have an appointment with a neurologist thursday also for our 6

year

> old son. We've just finished round 4 of chelation and I am not

seeing

> really any good changes. We went from 75mg DMSA to 200mg this last

time.

> I want to talk to the doctor about Adderrall and/or Depakote for our

son.

> I know I should be patient and wait for chelation results (hair and

> urine) before trying meds but he is driving us crazy with mood

swings and

> school telling us he's " not focusing " !! Does anyone have experience

with

> either of these meds while chelating?? Please advise.

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/tagj.

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If you haven't tried any dietary intervention yet, I would try that before

you go the Zoloft route. Dairy caused quite a lot of anxiety and emotional

outbursts in my daughter and these symptoms diminished within days of

removing the dairy. For some kids, the gluten has a far greater affect on

their emotions. Either way, it's a far healthier way to go if it will do

the trick. If dietary restrictions don't help, craniosachrial (sp?) therapy

can be very calming. You want meds to be your last option.

I had my daughter put on Prozac even though she'd been dairy-free and

gluten-free (and much calmer) because at 6 she was still non-verbal. I'd

read that SSRI's might help bring her speech back. It didn't. She's on a

very very low dose (2.5mg) now and we are chelating and having no problems.

Re: [ ] Zoloft

> We have an appointment with a neurologist thursday also for our 6 year

> old son. We've just finished round 4 of chelation and I am not seeing

> really any good changes. We went from 75mg DMSA to 200mg this last time.

> I want to talk to the doctor about Adderrall and/or Depakote for our son.

> I know I should be patient and wait for chelation results (hair and

> urine) before trying meds but he is driving us crazy with mood swings and

> school telling us he's " not focusing " !! Does anyone have experience with

> either of these meds while chelating?? Please advise.

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/tagj.

>

>

>

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Another thought. Maybe it is not just the mercury or heavy metals?

What about other chemical toxins? Read Dr. Hulda e's " A Cure

for All Diseases " , maybe provide some insight. Good luck, KenG

--- In egroups, stephanie nickolson <snickol@J...>

wrote:

> We have an appointment with a neurologist thursday also for our 6

year

> old son. We've just finished round 4 of chelation and I am not

seeing

> really any good changes. We went from 75mg DMSA to 200mg this last

time.

> I want to talk to the doctor about Adderrall and/or Depakote for

our son.

> I know I should be patient and wait for chelation results (hair and

> urine) before trying meds but he is driving us crazy with mood

swings and

> school telling us he's " not focusing " !! Does anyone have experience

with

> either of these meds while chelating?? Please advise.

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/tagj.

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,

we met with the chelation doc and he said that the SSRIs would be ok to take

during chelation. but also recommended as did Ken G and Ann Brasher, that we

try 5 HTP first.

Personally I would not give up on chelation yet. what is his schedule. are

you supplementing with minerals?

My son also has the focusing issues, but it got much better with a new

classroom, the old one was over stimulating and boring work. I am having him

tested for CAPD. It may take 6 months to see results from chelation. I

believe we are starting to see after only a couple of months.

Carol

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I give my son 3 mg of meletonin, with magnesium and 50 mg zinc

before bed and now I've added the MSM and hes out like a light

within l/2 hour and sleeps all night. I have to pull him out of bed

in the morning. I need to let you know we are talking about a very

hyper active child. I would encourage you not to give up yet before

trying some of these supplements with the meletonin. The reason

to not give up is there is not to much more we can do for our children

to treat there condition. Theres so many children getting better from

the chelation. Try the MSM its great stuff, make sure you give it with

vit. C. My sons behavior improved greatly after giving this supplement.

I give it morning, afternoon and evening l,000 mgs you can not give

to much of this stuff.

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,

You have to stay on this type of medicine or wean it out very

gradually. So coming off of Depakene is not a option at this time for

my oldest daughter. You also have to test liver function every ninety

days or so. Last weekend, We chelated for the first time at 200 mg

chemet for three days with no ill effects and some very positive

effects. So will see how it goes.

a

--- In egroups, stephanie nickolson <snickol@J...>

wrote:

> a, Thanks for the reply. Are you going to continue giving the

> Depakene on the days that you're chelating? (The on days) Just

wondering.

> (I wonder if the DMSA will bind to the Depakene instead of the heavy

> metals??

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/tagj.

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Which brand of MSM are you giving your son? Is there a recommended brand on

this list?

Re: [ ] Zoloft

> I give my son 3 mg of meletonin, with magnesium and 50 mg zinc

> before bed and now I've added the MSM and hes out like a light

> within l/2 hour and sleeps all night. I have to pull him out of bed

> in the morning. I need to let you know we are talking about a very

> hyper active child. I would encourage you not to give up yet before

> trying some of these supplements with the meletonin. The reason

> to not give up is there is not to much more we can do for our children

> to treat there condition. Theres so many children getting better from

> the chelation. Try the MSM its great stuff, make sure you give it with

> vit. C. My sons behavior improved greatly after giving this supplement.

> I give it morning, afternoon and evening l,000 mgs you can not give

> to much of this stuff.

>

>

>

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I'm giving MSM 2000, WHICH IS ONLY SOLD THRU

A DISTRIBUTOR OF FOR MOR INTERNATIONAL.

They have a web site www.formorintl.com the have a

tape entiltled the miracle of msm that I believe everyone

needs to hear. This tape blew me away, expecially

since we all spend so much money on vitamins for our

children we are missing the most important element

needed for those vitamins to work properly. See if

you can get the tape through the website, it not call

me 909-627-9403. God Bless

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Yes, I am giving my son l,000 mgs 3 times a day MSM. At night

I give him 3 mgs melatonin, but I started out with l mg. I've been giving

it for at least a year, and I give it along with zinc and magnesuim. Now

I have also add the MSM at night with it. All nutrition stores carry MSM

its best if it has the vitamin C combined in it. Anyway, melatonin promotes

the absorption of zinc and according to studies protects against brain

damage from mercury poisoning. Its a powerful antioxidant, able to enter

every cell of the body. Does your son have mercury from amalgam fillings?

You might want to try reducing the dose to a half of mg. Good Luck

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  • 11 months later...

We have an appointment with a neurologist thursday also for our 6 year

old son. We've just finished round 4 of chelation and I am not seeing

really any good changes. We went from 75mg DMSA to 200mg this last time.

I want to talk to the doctor about Adderrall and/or Depakote for our son.

I know I should be patient and wait for chelation results (hair and

urine) before trying meds but he is driving us crazy with mood swings and

school telling us he's " not focusing " !! Does anyone have experience with

either of these meds while chelating?? Please advise.

________________________________________________________________

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Juno offers FREE or PREMIUM Internet access for less!

Join Juno today! For your FREE software, visit:

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Thanks for responding so quick to my post. I was just signing off and

read yours. Your advise is very good and I appreciate it. My son is 6

(just turned ), weighs 41 lbs and I also thought it was a big jump in the

dosage but our ped (just became DAN certified at the conference) upped

it. I've also been consulting with Dr. Bradstreet and they thought 75mg

was so low for him. He is reallllllly irritable and mood swinging so much

today. He did this before we chelated, then it stopped for awhile and now

he's doing it again. You're right about drugs. I'll just get an opinion

form the neurologist and wait to do the chelation a few more rrounds. Are

you having success with your child? .

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a, Thanks for the reply. Are you going to continue giving the

Depakene on the days that you're chelating? (The on days) Just wondering.

(I wonder if the DMSA will bind to the Depakene instead of the heavy

metals??

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Hi Carole. We are doing 200mg of dmsa along with Glutathione, 100mg and

ALA also 100mg but stopped the melatonin because he was up all night

after taking only 1mg before bed. Why 5HTP? I think we tried giving him

that before and I don't remember why we stopped. I'm also giving him 20

supplements including all the oils and minerals. I think after talking to

our ped today that his yeast problem is back. He's got a rash on his butt

and is crying and temper tantruming. I heard mercury can do this.

( We've only

done 4 rounds of chelation and aren't giving up.)

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Hi. How old is your son? My son just turned 6. We've tried almost every

supplement with him and i've never given MSM. This is interesting. Our

son is very hyper also. We tried 1 mg of Melatonin and he was up all

night. Do you give him 1,000 mg 3 times a day? Thanks.

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  • 8 months later...
Guest guest

Now you know why we choose to use 5-htp and SAM-e instead of SSRIs.

mjh

In a message dated 8/1/02 4:28:11 PM Eastern Daylight Time,

faijcb@... writes:

>

> HI. I'm sorry to hear about your bad experience with the Zoloft. We

> started Zoloft after trying other ssri's. Our first few weeks (2-3) were

> rocky too. Ours was not as bad as yours but it sounds like your son is

> more verbal. By about the 4th week on Zoloft we saw the negative behavior

> stop and language increase. I hope this helps. Good luck.

>

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Guest guest

,

You live in Michigan? So do I. How long have you been on the

protocol? Is it helping your child. I called for my information packet and

tapes

and am going to make an appointment to see Dr. Goldberg.

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Guest guest

HI. I'm sorry to hear about your bad experience with the Zoloft. We started

Zoloft after trying other ssri's. Our first few weeks (2-3) were rocky too.

Ours was not as bad as yours but it sounds like your son is more verbal. By

about the 4th week on Zoloft we saw the negative behavior stop and language

increase. I hope this helps. Good luck.

_Noelle

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  • 1 month later...

My daughter had what was thought to have been a temporal lobe seizure for

the first time yesterday. Now I really am about ready to throw in the

towel. After reading the internet stuff on zoloft, I'm wondering whether it

is safe.

courtney

About to throw in the towel

> >Date: Sun, 25 Aug 2002 07:41:32 -0500

> >

> >I need some encouragement that the protocol is worthwhile. We have

> >been giving my daughter valtrex, antifungal and various SSRIs for a

little

> >over a year now. In that year, she has torn strips of wallpaper off the

> >wall, colored on the wall, peed all over her room so that it stinks,

lined

> >items up. Every time we increase or change a SSRI, she stays up at

night.

> >We just increased Zoloft and we are entering our second week of her

staying

> >up, running around, jumping on her bed, kicking the wall. the earliest

she

> >has crashed in two weeks is 11:30 pm. I have just about had it. She

never

> >did any of these things before the medications. When she finally goes to

> >bed, my 4 month baby is up!

> > Good things in this year: a little more alert, we are doing well in our

> >ABA

> >programs and she is starting to say some words, sounds. The ABA and

> >speeech

> >may be attributable to the fantastic A BA consultant we have and the

over

> >2

> >hours of oral motor speech therapy per week. any encouragement out

there?

> >At about midnight every night, I am about ready to throw in the towel...

> >

> >courtney

>

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

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>

>

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>

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Hi ,

I hope that my posts on antidepressants/seizures will help in some way.

There weren't alot of abstracts on SSRI's and seizures, but it's

possible,(usually higher doses) even though they are considered low risk. I

guess anything with immune effects could trigger an extremely irritable,

susceptable, brain. It would probably be difficult to determine for sure

because med-free kids like ours sometimes have seizures. The positive side

is that if she had a seizure there should be neuroprotective effects. That

is something that the seizure meds don't usually do.

Let's hope that this was just some type of wierd fluke and everything will

smooth out.

Cheryl

>From: " Stillman " <courtneycns@...>

>Reply-

>< >

>Subject: Re: zoloft

>Date: Mon, 2 Sep 2002 22:52:07 -0500

>

>My daughter had what was thought to have been a temporal lobe seizure for

>the first time yesterday. Now I really am about ready to throw in the

>towel. After reading the internet stuff on zoloft, I'm wondering whether

>it

>is safe.

>

>courtney

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Our son has had two seizures before we started the protocol and two

since we have been on the protocol. We can't determine a reason for either.

Dr.G did call emergency and discuss treatment options with the ER doctor at

1 am and followed up with us all weekend. Our son is now on Depokate and

appears to be doing fine (much better than mom ;o) ).

Re: zoloft

> >Date: Mon, 2 Sep 2002 22:52:07 -0500

> >

> >My daughter had what was thought to have been a temporal lobe seizure for

> >the first time yesterday. Now I really am about ready to throw in the

> >towel. After reading the internet stuff on zoloft, I'm wondering whether

> >it

> >is safe.

> >

> >courtney

>

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>

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  • 4 months later...

Hello Everyone,

I have read lots of negatives on zoloft...Anyone have anything positive

to say ...or any good results or comments ....We just started today

..........thanks ...............Candi

Hi Candi, my son has been on Zoloft for three weeks now after a disastrous trial

with Paxil (which made him very hyper, stimmy, and spacey)...and so far, so

good. He's been very alert and verbal on it, has had great bursts in language,

and except for a few days at the beginning, has not been hyper at all and is

sleeping well. It's still early, though, to tell if we've found the " right "

SSRI. I really think whether it will be positive or negative depends on the

individual child, just as it is with individual adults. I have been taking

Zoloft for 8 years and have been extremely happy with it (tried Prozac first,

and also did a short trial of Celexa about 3 years ago -- both were awful).

Hope that will help a little. Good luck!

Donna

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  • 3 weeks later...

In a message dated 2/21/2003 10:59:51 PM Central Standard Time,

donnaaron@... writes:

> and that she has changed her mind about his progress and at the IEP (next

> Thursday) she might recommend a special day class for him in the fall

> instead of full inclusion in regular kinder. I was devastated -- he's WAY

> too smart to be relegated to a special ed class

It's not just 'smarts' that keep kids out of special ed. Full day inclusion

may not be the answer or the best thing for your son. I have twins....6

years old. One is in full inclusion in K, the other is in a special class

with inclusion about 75% of the time in K. My son in the partial inclusion is

having the best year of his life with school, my daughter in full inclusion

is having her worst. Both have been in school for 4 years with the same

teachers, therapists and aids. Nothing new. The partial inclusion, gives a

child (who may need it) a time to transition, wind down, self adjust, some

emotional one on one, etc. My son is bright to, recent testing that all

students went through in K placed him as being at the number one spot of his

class out of 104 students....but he's still autistic.

Donna W. Pittard

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