Guest guest Posted November 27, 2000 Report Share Posted November 27, 2000 Carol, My daughter had quite a lot of improvement when we began giving her Prozac about a year ago. I have her at a very low dose while chelating (2.5 mg) - not wanting to take her off completely because I've heard if you take them off and then later, put them back on, it often will not work for them. Don't ask me why. Temple Grandin wrote a paper about medications that includes SSRI's on the autism website that partners with the autism research institute - Edelson's website up in Oregon. I've also read though that they burden the liver so you may want to try chelation first and see if the Zoloft is necessary afterwards. [ ] Zoloft > We went to the neurologist today and it was not as bad as I expected. I > didn't elaborate much on the mercury thing, as I didn't see the point. > Anyway he thinks Hunter's problems stem from anxiety (anxiety and depression > do run in my family). He wants to try Hunter on Zoloft. Do any of you have > any experiences to share, good or bad? We have an appt with our chelation > doc tomorrow and I will discuss this with him. Of course I am wondering if I > can do them together. Any thoughts? > > Carol G > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2000 Report Share Posted November 28, 2000 Drugs are mainly to treat symptoms and have pretty much never cured anything. They don't treat the cause of the problem. Try as best you can to stick with the treatment of the cause - that doesn't mean that you never use them but recognise what you are doing and I don't think you will use them very often. Zoloft is a powerful drug and does many things, some of which are what you want but most of which are bad for the long term recovery of the person. All drugs do more than one thing - the drug company chooses the one thing they want and test for it - they call the rest " side effects " . Mercury and toxicity probably run in your family, not anxiety and depression - they are merely the symptoms of the problem. Good luck KenG > We went to the neurologist today and it was not as bad as I expected. I > didn't elaborate much on the mercury thing, as I didn't see the point. > Anyway he thinks Hunter's problems stem from anxiety (anxiety and depression > do run in my family). He wants to try Hunter on Zoloft. Do any of you have > any experiences to share, good or bad? We have an appt with our chelation > doc tomorrow and I will discuss this with him. Of course I am wondering if I > can do them together. Any thoughts? > > Carol G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 PLeasse read up about Adderall and any drug before you use it. They aren't any better tested on children than the vaccinations we are blaming for so many of our kids problems. They have terrible so-called " side effects " ? Increasing from 75mg to 200 mg is a big jump? how old? Weight? Days on/off? Also, don't let your son's school effectively " prescribe " by complaining enough - their weaknesses at being able to teach your son should not be cause for potentially making him into a drug addict! Sorry, just my thoughts! Good luck and much love to you all, KenG --- In egroups, stephanie nickolson <snickol@J...> wrote: > We have an appointment with a neurologist thursday also for our 6 year > old son. We've just finished round 4 of chelation and I am not seeing > really any good changes. We went from 75mg DMSA to 200mg this last time. > I want to talk to the doctor about Adderrall and/or Depakote for our son. > I know I should be patient and wait for chelation results (hair and > urine) before trying meds but he is driving us crazy with mood swings and > school telling us he's " not focusing " !! Does anyone have experience with > either of these meds while chelating?? Please advise. > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 Hi , I have two daughters on Depakene for almost a year now. We are just starting chelation. I asked my very conservative neurologist if this was okay. Chemet and Depakene. He said it was perfectly safe but he was not going interestd in chelation with his patients at this time. We went to a DAN physician for the Chemet. My neurologist suggested both Adderal and Depakene. I chose just the Depakene with acceptable results. I don't believe in any more medication than necessary but both my daughters showed seizure activity on their EEGs. a In egroups, stephanie nickolson <snickol@J...> wrote: > We have an appointment with a neurologist thursday also for our 6 year > old son. We've just finished round 4 of chelation and I am not seeing > really any good changes. We went from 75mg DMSA to 200mg this last time. > I want to talk to the doctor about Adderrall and/or Depakote for our son. > I know I should be patient and wait for chelation results (hair and > urine) before trying meds but he is driving us crazy with mood swings and > school telling us he's " not focusing " !! Does anyone have experience with > either of these meds while chelating?? Please advise. > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 If you haven't tried any dietary intervention yet, I would try that before you go the Zoloft route. Dairy caused quite a lot of anxiety and emotional outbursts in my daughter and these symptoms diminished within days of removing the dairy. For some kids, the gluten has a far greater affect on their emotions. Either way, it's a far healthier way to go if it will do the trick. If dietary restrictions don't help, craniosachrial (sp?) therapy can be very calming. You want meds to be your last option. I had my daughter put on Prozac even though she'd been dairy-free and gluten-free (and much calmer) because at 6 she was still non-verbal. I'd read that SSRI's might help bring her speech back. It didn't. She's on a very very low dose (2.5mg) now and we are chelating and having no problems. Re: [ ] Zoloft > We have an appointment with a neurologist thursday also for our 6 year > old son. We've just finished round 4 of chelation and I am not seeing > really any good changes. We went from 75mg DMSA to 200mg this last time. > I want to talk to the doctor about Adderrall and/or Depakote for our son. > I know I should be patient and wait for chelation results (hair and > urine) before trying meds but he is driving us crazy with mood swings and > school telling us he's " not focusing " !! Does anyone have experience with > either of these meds while chelating?? Please advise. > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 Another thought. Maybe it is not just the mercury or heavy metals? What about other chemical toxins? Read Dr. Hulda e's " A Cure for All Diseases " , maybe provide some insight. Good luck, KenG --- In egroups, stephanie nickolson <snickol@J...> wrote: > We have an appointment with a neurologist thursday also for our 6 year > old son. We've just finished round 4 of chelation and I am not seeing > really any good changes. We went from 75mg DMSA to 200mg this last time. > I want to talk to the doctor about Adderrall and/or Depakote for our son. > I know I should be patient and wait for chelation results (hair and > urine) before trying meds but he is driving us crazy with mood swings and > school telling us he's " not focusing " !! Does anyone have experience with > either of these meds while chelating?? Please advise. > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 , we met with the chelation doc and he said that the SSRIs would be ok to take during chelation. but also recommended as did Ken G and Ann Brasher, that we try 5 HTP first. Personally I would not give up on chelation yet. what is his schedule. are you supplementing with minerals? My son also has the focusing issues, but it got much better with a new classroom, the old one was over stimulating and boring work. I am having him tested for CAPD. It may take 6 months to see results from chelation. I believe we are starting to see after only a couple of months. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 I give my son 3 mg of meletonin, with magnesium and 50 mg zinc before bed and now I've added the MSM and hes out like a light within l/2 hour and sleeps all night. I have to pull him out of bed in the morning. I need to let you know we are talking about a very hyper active child. I would encourage you not to give up yet before trying some of these supplements with the meletonin. The reason to not give up is there is not to much more we can do for our children to treat there condition. Theres so many children getting better from the chelation. Try the MSM its great stuff, make sure you give it with vit. C. My sons behavior improved greatly after giving this supplement. I give it morning, afternoon and evening l,000 mgs you can not give to much of this stuff. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 , You have to stay on this type of medicine or wean it out very gradually. So coming off of Depakene is not a option at this time for my oldest daughter. You also have to test liver function every ninety days or so. Last weekend, We chelated for the first time at 200 mg chemet for three days with no ill effects and some very positive effects. So will see how it goes. a --- In egroups, stephanie nickolson <snickol@J...> wrote: > a, Thanks for the reply. Are you going to continue giving the > Depakene on the days that you're chelating? (The on days) Just wondering. > (I wonder if the DMSA will bind to the Depakene instead of the heavy > metals?? > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 Which brand of MSM are you giving your son? Is there a recommended brand on this list? Re: [ ] Zoloft > I give my son 3 mg of meletonin, with magnesium and 50 mg zinc > before bed and now I've added the MSM and hes out like a light > within l/2 hour and sleeps all night. I have to pull him out of bed > in the morning. I need to let you know we are talking about a very > hyper active child. I would encourage you not to give up yet before > trying some of these supplements with the meletonin. The reason > to not give up is there is not to much more we can do for our children > to treat there condition. Theres so many children getting better from > the chelation. Try the MSM its great stuff, make sure you give it with > vit. C. My sons behavior improved greatly after giving this supplement. > I give it morning, afternoon and evening l,000 mgs you can not give > to much of this stuff. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 I'm giving MSM 2000, WHICH IS ONLY SOLD THRU A DISTRIBUTOR OF FOR MOR INTERNATIONAL. They have a web site www.formorintl.com the have a tape entiltled the miracle of msm that I believe everyone needs to hear. This tape blew me away, expecially since we all spend so much money on vitamins for our children we are missing the most important element needed for those vitamins to work properly. See if you can get the tape through the website, it not call me 909-627-9403. God Bless Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 Yes, I am giving my son l,000 mgs 3 times a day MSM. At night I give him 3 mgs melatonin, but I started out with l mg. I've been giving it for at least a year, and I give it along with zinc and magnesuim. Now I have also add the MSM at night with it. All nutrition stores carry MSM its best if it has the vitamin C combined in it. Anyway, melatonin promotes the absorption of zinc and according to studies protects against brain damage from mercury poisoning. Its a powerful antioxidant, able to enter every cell of the body. Does your son have mercury from amalgam fillings? You might want to try reducing the dose to a half of mg. Good Luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 We have an appointment with a neurologist thursday also for our 6 year old son. We've just finished round 4 of chelation and I am not seeing really any good changes. We went from 75mg DMSA to 200mg this last time. I want to talk to the doctor about Adderrall and/or Depakote for our son. I know I should be patient and wait for chelation results (hair and urine) before trying meds but he is driving us crazy with mood swings and school telling us he's " not focusing " !! Does anyone have experience with either of these meds while chelating?? Please advise. ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Thanks for responding so quick to my post. I was just signing off and read yours. Your advise is very good and I appreciate it. My son is 6 (just turned ), weighs 41 lbs and I also thought it was a big jump in the dosage but our ped (just became DAN certified at the conference) upped it. I've also been consulting with Dr. Bradstreet and they thought 75mg was so low for him. He is reallllllly irritable and mood swinging so much today. He did this before we chelated, then it stopped for awhile and now he's doing it again. You're right about drugs. I'll just get an opinion form the neurologist and wait to do the chelation a few more rrounds. Are you having success with your child? . ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 a, Thanks for the reply. Are you going to continue giving the Depakene on the days that you're chelating? (The on days) Just wondering. (I wonder if the DMSA will bind to the Depakene instead of the heavy metals?? ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Hi Carole. We are doing 200mg of dmsa along with Glutathione, 100mg and ALA also 100mg but stopped the melatonin because he was up all night after taking only 1mg before bed. Why 5HTP? I think we tried giving him that before and I don't remember why we stopped. I'm also giving him 20 supplements including all the oils and minerals. I think after talking to our ped today that his yeast problem is back. He's got a rash on his butt and is crying and temper tantruming. I heard mercury can do this. ( We've only done 4 rounds of chelation and aren't giving up.) ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Hi. How old is your son? My son just turned 6. We've tried almost every supplement with him and i've never given MSM. This is interesting. Our son is very hyper also. We tried 1 mg of Melatonin and he was up all night. Do you give him 1,000 mg 3 times a day? Thanks. ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Now you know why we choose to use 5-htp and SAM-e instead of SSRIs. mjh In a message dated 8/1/02 4:28:11 PM Eastern Daylight Time, faijcb@... writes: > > HI. I'm sorry to hear about your bad experience with the Zoloft. We > started Zoloft after trying other ssri's. Our first few weeks (2-3) were > rocky too. Ours was not as bad as yours but it sounds like your son is > more verbal. By about the 4th week on Zoloft we saw the negative behavior > stop and language increase. I hope this helps. Good luck. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 , You live in Michigan? So do I. How long have you been on the protocol? Is it helping your child. I called for my information packet and tapes and am going to make an appointment to see Dr. Goldberg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 HI. I'm sorry to hear about your bad experience with the Zoloft. We started Zoloft after trying other ssri's. Our first few weeks (2-3) were rocky too. Ours was not as bad as yours but it sounds like your son is more verbal. By about the 4th week on Zoloft we saw the negative behavior stop and language increase. I hope this helps. Good luck. _Noelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 My daughter had what was thought to have been a temporal lobe seizure for the first time yesterday. Now I really am about ready to throw in the towel. After reading the internet stuff on zoloft, I'm wondering whether it is safe. courtney About to throw in the towel > >Date: Sun, 25 Aug 2002 07:41:32 -0500 > > > >I need some encouragement that the protocol is worthwhile. We have > >been giving my daughter valtrex, antifungal and various SSRIs for a little > >over a year now. In that year, she has torn strips of wallpaper off the > >wall, colored on the wall, peed all over her room so that it stinks, lined > >items up. Every time we increase or change a SSRI, she stays up at night. > >We just increased Zoloft and we are entering our second week of her staying > >up, running around, jumping on her bed, kicking the wall. the earliest she > >has crashed in two weeks is 11:30 pm. I have just about had it. She never > >did any of these things before the medications. When she finally goes to > >bed, my 4 month baby is up! > > Good things in this year: a little more alert, we are doing well in our > >ABA > >programs and she is starting to say some words, sounds. The ABA and > >speeech > >may be attributable to the fantastic A BA consultant we have and the over > >2 > >hours of oral motor speech therapy per week. any encouragement out there? > >At about midnight every night, I am about ready to throw in the towel... > > > >courtney > > > _________________________________________________________________ > Join the world's largest e-mail service with MSN Hotmail. > http://www.hotmail.com > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 Hi , I hope that my posts on antidepressants/seizures will help in some way. There weren't alot of abstracts on SSRI's and seizures, but it's possible,(usually higher doses) even though they are considered low risk. I guess anything with immune effects could trigger an extremely irritable, susceptable, brain. It would probably be difficult to determine for sure because med-free kids like ours sometimes have seizures. The positive side is that if she had a seizure there should be neuroprotective effects. That is something that the seizure meds don't usually do. Let's hope that this was just some type of wierd fluke and everything will smooth out. Cheryl >From: " Stillman " <courtneycns@...> >Reply- >< > >Subject: Re: zoloft >Date: Mon, 2 Sep 2002 22:52:07 -0500 > >My daughter had what was thought to have been a temporal lobe seizure for >the first time yesterday. Now I really am about ready to throw in the >towel. After reading the internet stuff on zoloft, I'm wondering whether >it >is safe. > >courtney _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 Our son has had two seizures before we started the protocol and two since we have been on the protocol. We can't determine a reason for either. Dr.G did call emergency and discuss treatment options with the ER doctor at 1 am and followed up with us all weekend. Our son is now on Depokate and appears to be doing fine (much better than mom ;o) ). Re: zoloft > >Date: Mon, 2 Sep 2002 22:52:07 -0500 > > > >My daughter had what was thought to have been a temporal lobe seizure for > >the first time yesterday. Now I really am about ready to throw in the > >towel. After reading the internet stuff on zoloft, I'm wondering whether > >it > >is safe. > > > >courtney > > > _________________________________________________________________ > Chat with friends online, try MSN Messenger: http://messenger.msn.com > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2003 Report Share Posted January 31, 2003 Hello Everyone, I have read lots of negatives on zoloft...Anyone have anything positive to say ...or any good results or comments ....We just started today ..........thanks ...............Candi Hi Candi, my son has been on Zoloft for three weeks now after a disastrous trial with Paxil (which made him very hyper, stimmy, and spacey)...and so far, so good. He's been very alert and verbal on it, has had great bursts in language, and except for a few days at the beginning, has not been hyper at all and is sleeping well. It's still early, though, to tell if we've found the " right " SSRI. I really think whether it will be positive or negative depends on the individual child, just as it is with individual adults. I have been taking Zoloft for 8 years and have been extremely happy with it (tried Prozac first, and also did a short trial of Celexa about 3 years ago -- both were awful). Hope that will help a little. Good luck! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 In a message dated 2/21/2003 10:59:51 PM Central Standard Time, donnaaron@... writes: > and that she has changed her mind about his progress and at the IEP (next > Thursday) she might recommend a special day class for him in the fall > instead of full inclusion in regular kinder. I was devastated -- he's WAY > too smart to be relegated to a special ed class It's not just 'smarts' that keep kids out of special ed. Full day inclusion may not be the answer or the best thing for your son. I have twins....6 years old. One is in full inclusion in K, the other is in a special class with inclusion about 75% of the time in K. My son in the partial inclusion is having the best year of his life with school, my daughter in full inclusion is having her worst. Both have been in school for 4 years with the same teachers, therapists and aids. Nothing new. The partial inclusion, gives a child (who may need it) a time to transition, wind down, self adjust, some emotional one on one, etc. My son is bright to, recent testing that all students went through in K placed him as being at the number one spot of his class out of 104 students....but he's still autistic. Donna W. Pittard Quote Link to comment Share on other sites More sharing options...
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