Welcome Bob

[Guest guest]

Welcome to Bob. May I ask why you were wearing braces since you

were a child, but only diagnosed with CMT in the 90s? ~ Gretchen

robert cockerham wrote:

> Hi my name is Bob and I was diagnosed back in the early 90's. Other than the

> fact that I have to wear AFOs I don't seem to be suffering that much from CMT.

I

> have worn them off and on since I was a kid.

>

[Guest guest]

Bob and group;

 

Welcome to our humble group,  the group has been so informative on RA for me. 

It was the first time I looked for a group when I found this one through a

friend of a friend.  I am so glad I did.  We discuss many things here for

health.  I am so glad of that.

 

I take Humira injections and it helps a lot.  I learned here that the right

cocktail is out there for us,  our rheumy will find it if we keep on them. 

 

I am sorry to hear that you are so fatigued.  Maybe talk to your rheumy about

that,  unless you already have.  I hope and pray your meds work out for you. 

God bless and take care..................................Clora

 

From: Jerry <itsallgood6942@...>

Subject: Re: [ ] Re: Osteo mostly small frames Clora

Date: Friday, November 14, 2008, 11:34 AM

Hello Everyone,

I am a newbie to the group, first time i have actually looked into any of the

groups out there in cyber space..  )

I am a 42 year old Caucasian male. I was diagnosed 10 years ago, so I can

understand a lot of what i have been reading these last couple of weeks.... 

Luckily i have not had very severe reactions to any of the meds i have taken

over the years...  like most of you i have been on and off of prednisone, i had

methotrexate for quite a while in the beginning. For about 6 years now i have

been on Enbrel and have seem to be pretty successful with it up until the last

year or so....  Talking to my Rhumey last week we have decided to give Humera a

go...  we'll see how that does!! lol..

 

Luckily i would have to say that i do not have a severe case of RA, I am still

able to function well although everything is a chore, and usually very

exhausting.. .  Although the dr had run some sort of a blood test a couple of

months ago and informed me that i do have an aggressive form of RA.. ???  what

ever that means.. lots of unknowns with this disease..

 

The last couple of days i have heard you all mention " flares " . I'm actually

looking for a little help in gauging what a flare is?? Again fortunately I have

never again experienced the pain that i had experienced at the onset of the RA,

but i am almost always in some form of pain, something usually hurts one way or

another or one degree to another. The last 3 - 4 months have been probably the

worst i have had in the ten years,,,,  my hands have been constantly swollen and

very sensitive... .  even experiencing numbness, and the pain has been awakening

me at night...    So i guess my question is ...Is this a flare??  and the rest

of the time has just been normal??  if there is a normal?? )  any input would

be greatly appreciated. I must say it  is comforting to talk to people who can

truly understand, that has always been very frustrating. ...  nice to know you

are not so alone in this after all....  although i'm sorry were in the same boat

together.... 

 

 

Hope all is well

Bob