Re: Too much info re combo ??

March 29, 2000

It is my husband who has Hep-c and various other problems now too. I dont

think anyone can have enough information in regards to this disease. I for

one at first was overwhelmed by it all. But today when I went in the Dr.'s

office with my husband and started asking the questions I have learned to ask

from readings like these I felt like I really knew what I was talking about.

Even better the DR. said that I knew a lot and to keep on reading. Not

everything out there is going to happen to everyone we are all different. It

is good to know that there are different side effects for all of us. Then

the Dr.'s will be able to learn more about it. My Husband will not be able to

take the drug treatment offered now. Cirrhosis is to bad. Plus enlarged

spleen and portal hypertension, hypertension, chronic fatigue,ascities. So

we will not be able to do anything but get monitored and blood work. So each

one is different and each one has something to offer another. I am thank ful

for these groups. I am also thankful that I can find out so much on this

computer. hope to learn more and God Bless you all. Irish

March 29, 2000

...

Thanks for the long post about your sister. I find stories like that

very helpful when I am trying to decide what to do about things. I am

glad that you were willing to put it all down for us.

I sure wish that I had a little sis like you.

You said: " But honestly, Merril, haven't you noticed that the people in

the

group and information you get here is more up-to-date than what the

doctors know? What could be scarier than the thought of managing HCV

based on information found in published books? "

Absolutely. It is true here and in my mitochondrial disorder group. It

is amazing how well-informed and up-to-date someone can be when it is

their body that is affected. The texts are too generic and too

careful. I was given two booklets to read on the combo therapy and have

searched out info but the best info is coming from people who have tried

it and lived it. I am not saying that the docs are " bad " or " useless " ,

but I am saying that for the most part they haven't walked even one mile

in our shoes....

Merril

March 29, 2000

Welcome to the group Irish. I'm sorry you have to

join us but since you do, I'm glad to have you. This

is a very supportive group.

Jeanie

--- irishladi26@... wrote:

> From: irishladi26@...

>

> It is my husband who has Hep-c and various other

> problems now too. I dont

> think anyone can have enough information in regards

> to this disease. I for

> one at first was overwhelmed by it all. But today

> when I went in the Dr.'s

> office with my husband and started asking the

> questions I have learned to ask

> from readings like these I felt like I really knew

> what I was talking about.

> Even better the DR. said that I knew a lot and to

> keep on reading. Not

> everything out there is going to happen to everyone

> we are all different. It

> is good to know that there are different side

> effects for all of us. Then

> the Dr.'s will be able to learn more about it. My

> Husband will not be able to

> take the drug treatment offered now. Cirrhosis is to

> bad. Plus enlarged

> spleen and portal hypertension, hypertension,

> chronic fatigue,ascities. So

> we will not be able to do anything but get monitored

> and blood work. So each

> one is different and each one has something to offer

> another. I am thank ful

> for these groups. I am also thankful that I can find

> out so much on this

> computer. hope to learn more and God Bless you all.

> Irish

>

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__________________________________________________

March 30, 2000

Jeanie, thank you for the welcome. I was on this list before under a

different name before my comp crashed. Use to be Paddyp5. Got a bad virus and

it wiped me out. So had to re=do the whole computer took days to get back

what I could and restart all my lists. Hope you and Hubby are OK and had a

good St. Paddy's day. Take Care, Irish

March 30, 2000

Jeanie: My heart goes out to Pat--and to you too. I am the spouse also, and

it's so frustrating not to be able to help. My husband sleeps most of the

time too, and his back is killing him from being in bed so much. In fact, he

has to have surgery on it since none of the other quick fixes have worked.

Good luck next week at the doctor. Tree

March 30, 2000

Well then welcome back Irish.

St. Paddy's Day was a non-event here this year. In

year's past it used to be Pat's " feast day " , but

needless to say he has had no " spirits " in a very long

time.

Pat isn't doing very well, but as well as we can hope

for right now. He has developed some ascites and is

pretty uncomfortable right now. He is also dealing

with encephalopathy, which is driving him crazy. He

takes lactulose on a daily basis (1-2 tbsp. 2-3 times

a day), but it doesn't always help as much as we sould

like. He is sleeping more now than ever before, and

having trouble staying awake and focused when he's not

asleep. He has a dr. appt. next Wednesday so we will

see what he has to say.

Jeanie

--- irishladi26@... wrote:

> Jeanie, thank you for the welcome. I was on this

> list before under a

> different name before my comp crashed. Use to be

> Paddyp5. Got a bad virus and

> it wiped me out. So had to re=do the whole computer

> took days to get back

> what I could and restart all my lists. Hope you and

> Hubby are OK and had a

> good St. Paddy's day. Take Care, Irish

>

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__________________________________________________

March 30, 2000

Thanks Tree. Sometimes I think it's just as hard on

we spouses - just in a different way.

Jeanie

--- TreeSkinnr@... wrote:

> Jeanie: My heart goes out to Pat--and to you too.

> I am the spouse also, and

> it's so frustrating not to be able to help. My

> husband sleeps most of the

> time too, and his back is killing him from being in

> bed so much. In fact, he

> has to have surgery on it since none of the other

> quick fixes have worked.

> Good luck next week at the doctor. Tree

>

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__________________________________________________

March 30, 2000

I too think it is hard on the ones who have this damn disease. But as stated

before it is so hard on the ones around them to try and keep a stiff upper

lip so to speak. There are days when I want to hold him and other days when I

want to scream at him. The kids are doing fair with this. Now that we know

that the drug therapy will not be for him, we are wondering what will happen

next month when we go again? I am still looking for all I can find and as for

the depression it is part of this disease and for some a very scary part.

There doesn't have to be a history of depression. Any major illness has the

side effects of depression. the problem with this one is most of the meds for

depression aren't good for the liver, so what does one do then? Bill starts

therapy for the depression in 2 weeks so we will see what happens then. Hope

you all have a better day tomorrow, Take Care, Irish

March 30, 2000

Irish: My husband takes Prozac and it works for him (and is apparently

fairly liver friendly). Maybe we need a little too! Tree

March 31, 2000

Tree and Irish,

I'm in line too.....

Jeanie

--- TreeSkinnr@... wrote:

> Irish: My husband takes Prozac and it works for him

> (and is apparently

> fairly liver friendly). Maybe we need a little too!

> Tree

>

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