raising CMT children

[Guest guest]

Hi . First of all is this where I am supposed to answer?

I just click reply if this is not correct please let me know.

I don't want to break any rules, and I am not the best with

computers. I am 60 yrs old, so my children are grown. I have

4 children and one does not have CMT. When they were growing

up we always talked openly about CMT. My two girls accepted

it well as to what they had. My son never accepted it, it was

harder for him because of sports he could not play. The one

daughter who does not have CMT was fine about she was always

there to help, I would try to do special things with her once

a month. I am at home now I babysit my two grandchildren 2

and just turn 6. They live right down the stree from me,

there mom is a single parent and works, so she can use the

help. The kids are always here, and we love it. I use to work

in insurance, but went out on disability after my son died,

that was 10 years ago then the CMT got a little worse and I

never went back to work. But I am so happy taken care of the

kids.

When I was growning up no one know about CMT you were just

dumb for the things you coud not do. I think are children are

lucky that they know a little more about CMT. Please write me

and tell me about your family.