Guest guest Posted August 2, 2003 Report Share Posted August 2, 2003 Ian, Oh I am so sorry. How well I know the " confusion " . There are lots of us who don't know our 'type' or have been told we have one type by one doctor, then another type by another doctor. Or tests come back negative. Plus lots of us were mis-diagnosed, or like myself, rediagonsed with half a dozen other neurological problems - none of which I've got. Now here, this is wierd, I have classic CMT 1A symptoms, but no family history and normal EMG tests. Last doctor I went to for CMT said I am probably a 'new mutation'. I liken it to being a 'black sheep' of sorts. I didn't even know black sheep were real until I visited England. Then I saw 2 happy black sheep and 50 happy white sheep, and suddenly being 'different' didn't matter. An epiphany of sorts, I guess. Just some thoughts - did your EMG/NCV give indication you have Type 1? Or more like Type 2? Hang in there, you're no more a fraud than the rest of us...we're all just trying to live and understand what we've got and how to make the best of it ~ Gretchen Quote Link to comment Share on other sites More sharing options...
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