CMT 1A

[Guest guest]

HiColleen,

I am a 38yr. old female with CMT1A. I also have

days of feeling extremely tired and have no get up

and go,but I have found out I feel better if I get

up and get busy doing something. I was diagnosed 3

years ago. I just have to pace myself and have

patience because I can't move as quickly as I

could a few years ago. I now wear AFOS , and they

help alot with my balance and fatigue.

My hands are slowly getting worse but for the main

part still functioning ok. I have a great neurologist

who keeps in contact with the MDA doctors. I also

do pool therapy , it's great it makes it easier to

exercise and is enjoyable. Keep your spirits up.

[Guest guest]

I just found out the type my husband has, it is CMT 1A. He found out when he was

12. His dad had it too.

[Guest guest]

Hello J Hart,

An answer to your question about type of CMT. CMT1A

Age 16 daughter diagnosed at 12 because the tack shop noticed a

difference in her calf muscles when measuring for riding boots. The

same week her jazz teacher noticed a curvature in her spine (scoliosis)when she

bent over to do a flat back (stretching movemnet in jazz)She has pes cavus foot

also. Fell alot at age 7-8 seems to have outgrown.

Age 8 daughter diagnosed at age 6 pes cavus foot, slight scoliosis

Muscle atrophy and weakness, falls periodically.

I have all of the above but did not feel the need for testing.

Grandpa has all of the above and is in a state of denial.

Tammy

[Guest guest]

I found out I had CMT when I was 16. But I look back at old pic when I was much

younger and I always turned my foot in.

Tamara