Symptoms ~> to Helen

[Guest guest]

Helen,

Yes, I received this message at . I don't know why your posts are

coming back to you. Check your server, also make sure you are sending

the group posts to You can always post a

message to the group from in the website too (where it says " post " )-

under the " messages " category.

A person can have CMT and still have other illnesses/or conditions, yes;

like I have CMT and I had Rheumatic Fever. The RF was not caused by the

CMT nor part of it.

As too whether or not CMT CAUSES other illnesses directly has not been

established, but we do know that in some cases besides feet, legs, arms,

hands, etc., that the phrenic nerve can be affected.

Yes, perhaps a diagnosis of CMT will help narrow down your symptoms,

although remember, there are so many types, and so many of us are

affected differently. You might also want to look into CIDP (Chronic

Imflamatory Demyleinating Polyneuropathy) as well. And then there is

HNPP (Hereditary Neuropathy with Liabilities to Pressure Palsies) which

is the genetic opposite of CMT. See http://hnpp.org for more info on

that.

It is a shame you have to wait until January 4 to see a doctor. I don't

have that kind of patience!

Let me know if you still have trouble with posts.

~ Gretchen

The email group is a community of women and men, all ages and

stages of life, who share their experience, strength and hope with each

other that they may exchange ideas and solutions for living more

positive lives with Charcot Marie Tooth Disease. The only requirement

for membership is to have CMT or know someone with CMT. Persons in the

early stages of diagnosis are also welcome, as are medical

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