Guest guest Posted September 8, 2003 Report Share Posted September 8, 2003 Interesting I walked 5 miles a day and have always blamed that on my onset of CMT. My Aunt was also walking 3 miles a day when the onset hit her. in OK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2003 Report Share Posted September 8, 2003 I used to walk and or ride the bike 5 to 7 miles a day but can barely walk enough to get around now. Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 Coleen, Right now I'm not walking I can stand pretty good I stand everyday my mom is still walking she didn't know she had cmt until she went to doc. with me when I was little and he said it looks like she has cmt to she was 28 she was always falling as a child but they had no ideal what was wrong they said she was low on vitamins her legs are just not getting worse she dose move alot she also don't have a weight problem which makes it worse. you were saying you have twitching I have that too every once an a while my mom said she dose have it alot and the red hands and burning like you dose your arms hurt when you hold them up no for long and you mentioned fatigue I always tied quick even as a teen never could keep up with anyone. I need to start trying to walk in my afos I got in 2000 but it harder to walk in them but their right for me adjusted the way they need not like these I need will power. thanks share more later. Quote Link to comment Share on other sites More sharing options...
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