Re: All the symptons of CMT II but not a diagnose

September 21, 2003

In a message dated 9/21/2003 10:27:04 AM Pacific Daylight Time,

m.v.ooijen@... writes:

> I have all the symtons of the classic form of CMT II and a family

> history, but they can not diagnosed me because the EMG is oke.

> This was already a second opinion.

> What can I do about it, because I think it is CMT II.

> In the pas I have spastic colon 7 doctors say that.

> After a few years and many pain it was endometriose, so we have no

> children about this misdiagnosing. And now I think it's going the

> same way.

>

> Greetings

> Mieke

>

If you have all the symptons and a family history then you have CMT II. Of

course I am not a doctor but sometimes I know more then they do. Haha

September 21, 2003

Mieke, if you have a normal (OK) EMG, that is a sign of Type CMT II. Ask

your doctors WHY they DO NOT THINK you have CMT Type II. As for

diagnosis, I was first diagnosed with CMT, then later in life diagnosed

with 1/2 dozen other diseases, only to come back to a diagnosis of " some

type of neuronal form of CMT " - as a result of my latest EMG, which

showed all nerves in normal range and reinnervation.

~ Gretchen

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