Re: chemo for testicular cancer

October 14, 2003

Hi , I am very sorry that you are dealing with cancer.

My advice is what I would do not that you should do it. I

would call the City of Hope and ask them the cmt cancer

treatment question and also ask for a list of known neurotoxins. Sorry I

couldn't have been more help.

jenny

October 14, 2003

The first drug on CMT's " forbidden " list, is the chemo drug to avoid. I am

not sure of the spelling but it is something like Adriamyacin. My sister took

it for breast cancer (4 treatments) and if the cancer ever returns, she will

not be able to take it again, because it is very hard on the heart..

October 15, 2003

Hi Sharon,

Thank you very much for responding to the email .... unfortunately

's situation does not allow for the " surveillance " option.

His tumor is " multi-cell non-seminoma " , highly aggressive and must

be treated with the chemo drugs. I WISH it had been the other

variety .......... but He is seeing a neurologist and pulmonologist

this week and next before they start chemo, and I Think they've/we've

asked enough questions to drive them crazy!!!!

Thanks for all your prayers and support.

The email group is a community of women and men, all ages and stages of

life, who share their experience, strength and hope with each other that they

may exchange ideas and solutions for living more positive lives with Charcot

Marie Tooth Disease. The only requirement for membership is to have CMT or know

someone with CMT. Persons in the early stages of diagnosis are also welcome, as

are medical professionals. is not allied with any sect, denomination,

politics or institution; does not wish to engage in any controversy, neither

endorses or opposes any causes. There are no dues or fees required for

membership or participation in our discussions.

Recommended Posts