[]managing progression

[Guest guest]

Hi Sasied,

Thanks for answering. You're right--we look healthy

but aren't. This is all new to me since I was so

active the last 2 years and now it has come to a

screetching halt. And then I feel guilty when I just

sit around while my husband is doing all the stuff we

used to do together and I can't help him. Sometimes I

play " super mom " and do too much in the kitchen ( to

prove what?), and end up regretting it later. Lately I

have been having weird little muscle twitchings in my

legs and arms. There is no pain with it, though. Do

you still have a regular job? I have applied for

disability.

Colleen