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diagnosed at age 5

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i was a child when diagnosed with cmt i was told that i was the

first girl child diagnosed with this disease i am still mobile but

have a lot of ankle spraines and constant pain and swelling not to

mention when i had each of my children i put on a lot of weight and i

dont gain now but i cant seem to get it off either all four of my

children have this as well all to different degrees and i still dont

know much about this disease but i know the need for community support

is desperate and there are none where im from

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