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Steve,

Caffeine is a diuretic, which isn't great if you are trying to keep fluid

levels up to combat NMH. Caffeine also enhances pain, not great if you have

FM or neuro pain.

Barb

<< have you guy's seen the new research that indicates coffee lowers the risk

of Parkinson's disease and Alz D.

I glad I did give up joe

If you can't remember if you drink coffee you're in real trouble.

Now your hands are going to shake today if you drink coffee and tomorrow if

you don't

Steve

>>

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as a former coffee addict (major, believe me) I can offer a suggestion or

two if you want to cut it out without suffering. If you brew it, start

substituting with a good decaf; water processed is really good. You won't

notice a taste difference. It's also really helpful if someone else does

it- just increases the ratio of decaf to regular very slowly. (I think

it's better to do it slowly and not suffer!)

Also, if you drink instant, you can do the same thing with either decaf

crystals or products like 'Roma'. Depending on things you can drink, they

are made from all different ingredients, like beet pulp or chicory.

Honestly, they sound terrible but have a great toasted, coffee-like flavor.

I used to get migraines if I didn't have my coffee by 10:00 am. When I was

first sick with mono, I had to stop cold turkey. Last year, I stopped

again using the 'slow' method.

Christa R

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In response to the comments by Steve and Barb on the benefits versus costs

of coffee, I just wanted to note that caffeine functions as a partial

pain-killer for me as well as helping me to start cognitively functioning

after getting up in the morning. I am fighting off a viral infection right

now, and caffeine helps alot. Luckily, thanks to immunopro, I can function

enough to go to work (unlike the virally-based bouts leading to total

incapacitation before immunopro). But, the caeffine cuts down on the

degree of fatigue and achiness. I do wait a half hour after taking

immunopro before drinking coffee, though.

Judy

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  • 4 months later...

HI Marielize,

For me, I cannot drink coffee at all. It creates too much stomach acid for

me and I really suffer acid reflux syndrome to the max. I can have one,

eight ounce glass of milk per week which I cook with, without it bothering

me. I break it down into ounces when I use it in my cooking, and then, I

don't use it every week. If I use too much dairy, my joints ache, I break

out in a red patchy kind of rash all over, and my sinuses ache. As a double

" O " +, I must avoid all of the avoid lists.

Aloha,

CB

Dear group O-ers,

Can you tell me from your personal experience, if the coffee and milk taboo

is a serious one? What are the benefits of cutting it out totally or can I

get away with limiting myself to a cup or two? (You may have discussed this

in your archives but it is a bit time consuming downloading with a slow

server.)

Marielize

You are receiving this email because you elected to subscribe to the

mailing list.

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In a message dated 10/3/00 7:23:12 AM !!!First Boot!!!,

Goldie@... writes:

<< Dear group O-ers,

Can you tell me from your personal experience, if the coffee and milk taboo

is a serious one? What are the benefits of cutting it out totally or can I

get away with limiting myself to a cup or two? (You may have discussed this

in your archives but it is a bit time consuming downloading with a slow

server.)

Marielize >>

Milk (almost all dairy products actually) gives me chronic sinus troubles and

coffee made me feel bloated, swollen, and fatigued.

Tabitha

A coffee and ice cream addict before ER

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Dear Marielize

I only have one cup of tea a day and have coffee only when socializing with

friends as milk does not agree with me very well. I don't like the taste of

coffee without milk. Use rice milk with my cereal as I also seem to react to

soya milk and products

Also limit my intake of cheese to about 3 times a week - have mozarella or fetta

cheese.

Best wishes

Elize

Johannesburg

>>> Goldie@... 10/03/00 09:18AM >>>

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Coffee gives me the shakes and the runs and dairy makes me bloated, put on

fluid, tired, sorethroat, mucos, etc

>

><< Dear group O-ers,

> Can you tell me from your personal experience, if the coffee and milk

>taboo

> is a serious one? What are the benefits of cutting it out totally or can

>I

> get away with limiting myself to a cup or two? (You may have discussed

>this

> in your archives but it is a bit time consuming downloading with a slow

> server.)

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

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Marielize,

We've been off milk for two years and my seasonal sinus infections have all

but disappeared. The kids accept Silk and Soy Dream readily enough for their

cereal and because it's not as good tasting to them, my cold cereal budget

has been helped--it's such expensive food for what you get. Hang in there.

Your tastebuds will shift to the healthier foods soon.

Melinda

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>

>Know that there was nothing that you could have done and remember your fun

>times with him..he suffers no more...and thats likely what his goal was!!!!

Sheena,

Thanks. I know he was escaping his pain, the darkness, and his fear

of the doctors (since it was their error that blinded him.). I remember

his expressing the one thing he wanted to do (after he was blinded). He

wanted to drive his truck. He wanted somebody to take him to a big field,

get him behind the wheel, and navigate him around. Such a dream would have

been difficult to achieve, since his arthritis made it virtually impossible

for him to get in a vehicle. He couldn't bend at the waist, so sitting in

the seat would also have been impossible. Still, that was his dream.

When the battery in his truck went dead a while ago, he asked my father

to buy a new one for it. Interesting too, that the state of NJ renewed his

drivers license earlier this year, despite him being blind for about three

years. That just tickled him. So much for the system that is there to

alert the state when a person is no longer fit to drive. When the

application arrived....he said.... " Write the check. " Laughing that the

state still though he was capable of driving. (some NJ drivers drive as if

they are blind, so what's the difference.)

E-Mail: mailto:tabco@...

Web Page: http://www.bee.net/tabco/

Net Pager: http://wwp.mirabilis.com/3106983

ICQ # 3106983

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  • 3 months later...
  • 1 month later...
  • 1 year later...
Guest guest

I suppose my reaction is a normal one because coffee perks me up a

bit, although I don't get wired. As I age I seem to be more

addicted, i.e. sometimes end up with a slight headache in the

afternoon if I don't have it. OTH, mostly I can take it or leave

it. However, two small cups a day is my limit and it has to taste

right. I can't abide black coffee and require sweetener and cream

to drink it.

My husband, Jim, OTH, is somewhat the opposite. He says it works

both as a stimulant and as a relaxant. He drinks a lot of coffee,

like 4-5, 12 ounce cups a day. He also doesn't like it black.

What's different with him than has been mentioned thus far, and I

think is well known in the medical community, is that coffee can act

as a synergist in boosting the effects of certain medications.

[This is true of several common daily foods, which is one reason why

combinations of various foods and drugs or drugs and supplements can

be dangerous. For example, grapefruit can strongly stimulate the

effects of certain cardiac medication, while one should not ingest

much oily fish or large doses of vitamin E if you are on anti-coagulants.

The risks of mixing barbiturates and many narcotics and alcohol are

well known. The list is huge and a special discussion on " drug interaction "

or " food and drug interaction " would be a very useful one. Mel Siff]

I have talked about Jim's chronic head pain before (started when he

was injured in Viet Nam). The Pain Clinic at the West LA VA (one

doctor in particular) has decided that there has to be a reason for

this. Yesterday Jim was seen by a Neurologist and diagnosed with

Post Traumatic Migraine. I don't know why it has taken 30 years to

figure this out. Anyway, they are putting him on a mild

anti-seizure medication they use for this and told him that coffee

will definitely make it work better. In fact, this particular

medication can have an effect on the kidneys (produce stones in

people who have a propensity), so he was told to be sure to drink

plenty of water (which he does) and even lots of coffee (which he

does) to get the diuretic effect.

But even before this, Jim found that many pain medications work much

better when spiked with caffeine. Vicodin taken with Coke or Pepsi

is much more effective. (I hope that poor young man who objected to

our " drug " discussions won't be offended by this!)

[Note that caffeine can increase ambient tremor in the neuromuscular system

and can interfere with tasks which require fine motor control. Mel Siff]

Rosemary Wedderburn-Vernon

Marina del Rey, CA

IronRoses@...

http://home.earthlink.net/~dogbiscuit

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  • 9 months later...

For me, sometimes I can drink a cup of coffee in the morning (2x

week) and it gives me a lift and sometimes my body can't handle it.

When I had severe sleep problems a few years ago a cup of coffee made

me feel hungover and dehydrated the next day. These days coffee

makes me feel nauseaus, so I don't drink any.

One note is that coffee acts as a diuretic so we probably lose

essential mineral, this is not good for CFS because of our poor

absorption problems. Plus I read that it interfers with the

absorption of calcium.

I say drink in moderation and enjoy!

Nat

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Amen!

>>In a message dated 2/18/03 5:12:53 AM Pacific Standard Time,

lahra2000@... writes:

>

> In a message dated 2/18/03 6:45:22 AM Eastern Standard Time,

> writes:

>

> << don't think it serves anyone well to make such blanket statements as you

>

> did, that caffeine is terrible for everyone with CFIDS - for some of us it

> is, and for some of us it clearly is not, as with most everything connected

>

> with this DD.

>

> I just want to add that for years I was made to feel guilty for my coffee

> dependence. I have had around three cups of coffee per day all my life,

> well, since my late teens.

> I did attempt to stop for a year, and I felt worse than ever. Recently I

> had

> an experienced practitioner muscle test me, and I was very surprised that I

>

> tested strong to coffee. I don't know why. One thing is I have had very

> low

> blood pressure with this illnes, so maybe the coffee evens it out. There

> are

> so many things this illness takes away, I am not going to beat myself up

> about the few pleasures that remain available to me.

> Olga

>

>

> I

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

>

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  • 3 months later...
Guest guest

At 01:35 PM 6/6/03 +0000, you wrote:

>I have seen coffee EO on a couple of sites, bitter creek is one of them

>think that has it..If anyone does they will:o)

bitter creek has a synthetic fragrance oil, not an EO or absolute.

Your source for superb Essential Oils, Aromatherapy

Accessories, Information, Books and more!

Visit us at: <http://www.naturesgift.com>

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Guest guest

Yeah I know that..LOL

But there is no such thing as coffee EO,

I made an ERROR in typing out EO, DUH..ouch!

Karla,

-------Original Message-------

>I have seen coffee EO on a couple of sites, bitter creek is one of them

>think that has it..If anyone does they will:o)

bitter creek has a synthetic fragrance oil, not an EO or absolute.

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  • 2 months later...

I do

remember my mom grew peonies(which I always thought

smelled more like roses than her roses) and lily of

the valley, and our neighbors grew lilac bushes all

aroung their yard,which we used to play in. The

fragrance in the air was incredible.My mother would

cut boquets of lilacs,peonies, and lily of the valley

and the whole house would be fragrant. Nothing says

spring to me like those fragrances. Later,as a

teenager,she planted hyacinths, so I got introduced to

their fragrance. It's a pity that you cant get those

essences(except for maybe the hyacinth)

Hi ,

Thse are wonderful scents... too bad they are not available

naturally. And even hyacinth absolute (as beautiful as it is, sweet

and with green and slightly powdery undertones) preserves very little

if any of the heady fragrance of the fresh blossoms, which is fresh

and intoxicating at the same time...

But isn't it, in a lot of ways, the beauty of it all?

-what I mean is, some of the most beautiful things don't last very

long, and this way we can appreciate much more the beauty of the real

thing in nature...

Cheers,

Ayala Sender

Perfume Designer

Quinta Essentia Signature Perfumes

www.quinta-essentia.ca

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  • 1 month later...

i dont think you have to give up coffee to do bfl well. i have a small

cup a day, usually, with a little soy milk and splenda. if you want the

program to work for you forever, it's got to incorporate the things you

know you're going to want in your daily life. until you want to give up

coffee for reasons other than 'successful dieting', it's unlikely that

quitting will make you feel anything less than deprived.

i say have your cup!

-cera

www.strangestlittlemonster.com

www.mp3.com/glassbeadgame

wolfqueen79 wrote:

>Hello,

>

> I really love my coffe in the morning as i'm taking my kids to

>school. Do I really have to give it up to do well on BFL. The only

>thing that i put in it is 1 tbls of FF creamer. I just want to know

>what you all think!!

>

>

>

>

>

>

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  • 3 months later...

> Better luck to you this morning, girl.

>

> Elle

Elle, thanks. I could never drink six cups of coffee daily, by the

way, which is what I heard them say on TV. That bad part was that I

told myself to move the cup when he returns to the office. I had

already noticed he moved so fast and was knocking things over left

and right. It went on my brand new shoe (left) and I couldn't wipe

it off. Then he said something to the effect that that is why he

NEVER puts beverages near charts (a basic rule that I break ALL the

time!). I guess I should be okay from now on as I will be doing the

usual, seeing patients.

Marta

wishing I had used my Starbucks cup with the lid instead of the

styrofoam cup. But that sh*t didn't deserve my nice cup! LOL!

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  • 1 year later...

Wow!

I guess I hit something here!

I too have been learning more lately about chocolate and it too has manymany

redeeming qualities it turns out -- especially in raw form, wouldn't ya know!

Different processing methods (or no processing) certainly has an effect on so

may products. It's interesting to hear, Jane, that this coffee you're talking

about has less caffeine than even decaf! Its the caffeine (and sugar) that

keeps me from making Kambucha too.

Will, I'll give your email to my husband, Noi, he'll be so happy! Not only

are we eating red meat again which he's thrilled about now coffee too?

Well, I've got some more to think about -- maybe over a nice cup of coffee!

Thanks,

¸..· ´¨¨)) -:¦:-

¸.·´ .·´¨¨))

((¸¸.·´ ..·´ -:¦:-Mara

-:¦:- ((¸¸.·´*

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  • 7 months later...

Is that how I fixed my beat up liver? (he asked,

taking another sip of his vanilla macadamia nut Kona

coffee).

Seems like an odd thing to be studying in Japan, where

you would expect studies on the health benefits of

green tea! Oh, maybe it is the US and European

reseachers that study green tea, and the Japanese

study coffee! That way they get to travel more!

.... thinking I want to study the long term health

benefits of snorkeling in the Galapagos Islands..

--- Ric <richobbs1@...> wrote:

---------------------------------

From another list. Drink up!

>

> >>>In February, a team of Japanese researchers

reported in the

> Journal

> of the National Cancer Institute that people

who drank coffee

> daily,

> or nearly every day, had half the liver cancer

risk of those

> who never

> drank it. The protective effect occurred in

people who drank

> one to

> two cups a day and increased at three to four

cups.

<snip>

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  • 1 month later...

My facility does not offer coffee or tea to post-op patients. We only

provide sugar free jello and broth. The full liquid menu adds

Carnation sugar free instant breakfast with milk.

Jim Henry, RD

>

> Are any of your facilities recommending no coffee (decaf or regular)

for a period of time post-op (while healing)? We are debating whether

or not to remove coffee from our post-op inpatient diets to minimize

gut stimulation. We recommend avoiding citrus and spicy foods (known

offenders) and do not allow these on our post-op diets to minimize

irritation. So, our thought is why not coffee too? Would love to hear

what others are doing and recommending.

>

>

> ---------------------------------

> Music Unlimited - Access over 1 million songs. Try it free.

>

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We do not offer any coffee or tea to our post-op patients either.

Carmen Urrunaga, MS, RD, LD/N Clinical Nutrition Manager Kendall Regional Medical Center 11750 Bird Road Miami, FL 33175 305 223-3000 x2273 carmen.urrunaga@... visit us at: http:\\www.kendallmed.com This email and any files transmitted with it may contain PRIVILEGED or CONFIDENTIAL information and may be read or used only by the intended recipient. If you are not the intended recipient of the email or any of its attachments, please be advised that you have recieved this email in error and that any use, dissemination, distribution, forwarding, printing, or copying of this email or any attached files is strictly prohibited. If you have received this email in error, please immediatly purge it and all attachments and notify the sender by reply email or contact the sender at the number listed.

-----Original Message-----From: [mailto: ]On Behalf Of julie thompsonSent: Wednesday, October 19, 2005 12:37 AM Subject: Coffee

Are any of your facilities recommending no coffee (decaf or regular) for a period of time post-op (while healing)? We are debating whether or not to remove coffee from our post-op inpatient diets to minimize gut stimulation. We recommend avoiding citrus and spicy foods (known offenders) and do not allow these on our post-op diets to minimize irritation. So, our thought is why not coffee too? Would love to hear what others are doing and recommending.

Music Unlimited - Access over 1 million songs. Try it free.

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