Re: Symptoms come and go

[Guest guest]

and Gretchen, I guess I am not explaining

this coming and going right. I don't mean the pain,

weakness, etc. get better. They seem to go away and

come in spurts. Once it all gets worse it never gets

better. Just comes and goes. I hope this explains it

better.

Helen

[Guest guest]

Now I see. I'm exactly the same way. I have

moments of plateaus. I will progress rapidly with

my symptoms and then for no reason at all I stop

progressing and stay at the same level for a while.

Sometimes a plateau will last for years. Not sure

why it happens that way - but I sure am grateful

for those moments (even if one only lasts for a

few months).

Take care,

[Guest guest]

Hi all, I am the same way, I will also have periods of progression with major

pain, weakness and fatigue, during that time I noticed my feet and hands

change physically, then I will go into a plateau and all stays well for awhile.

During my plateaus I still get the normal pain,weakness and fatigue but it

is tolerable. During my bad spells I dont want to leave my bed. Stress is a

big factor. When I am under stress the progression seems worse and stays

around much longer. Carol

[Guest guest]

Hi ,

I can definitely relate to the sleeping problems, and my right finger

trembles when I'm on the computer, it shakes back and forth. One thing I'm

curious about, when I lost complete hand motion in my right hand in April,

why am I getting some motion back now?

Of course I'm thrilled to death, but thought once I had this happen, then

the nerve conduction test, then knew I had cmt1, I thought I'd never get

feeling back again??

Does this mean it can come and go, because I've definitely have had all the

other symtoms for years.

And , when I have good days and want to do yardwork or whatever, my

ex yells at me for going overboard, which I do, and then feel lousy for the

next day or so. I think we just want to get the most out of what we can do,

when we can do it!!...Oh well...

I also wish he'd read more about what I have so he would understand more.

Take care.