Re: pain and weakness

[Guest guest]

Helen, I felt as if I was on a free fall roller coaster with my Mom for at

least 5 years. She would be okay, then have a bad spell, then recover, but not

back to where she had been, then after a while she would have another bad

spell, then improve again, then down, then up a bit, on and on. It reminded me

of

ball that has been dropped ball -- it bounces back up after each drop, but not

as high as before. She had a bad fall with each episode of increased

weakness. She'd been a lifelong milk drinker, so she had strong bones and never

broke

any of them.

Some of her down times were so bad I didn't know if she would live through

them. She had progressive weakness, undiagnosed at the time, but I don't think

she had pain. She said she didn't, but she was from the generation that didn't

complain about that sort of thing, so I couldn't be sure. She did

involuntarily wince sometimes.

With me, the downward progression of weakness is fairly steady, as is the

pain. I'm fortunate that my hubby is so helpful, compassionate and considerate.

Kat

Seattle WA USA

[Guest guest]

Kat, This is exactly what I have been trying to

describe. My roller coaster is going rather fast

now.

Helen