Guest guest Posted September 6, 2003 Report Share Posted September 6, 2003 Hi , Your situation sounds just like me. I have been dx with CMT when I was 11, but don't know either what type I have. My mom has it too and her mom it seems to run in girls. I too wear AFOs but fell alot and now I am in a wheelchair. I fell pretty bad 1yr ago or so and never got walking again. Its hard but my husband helps me so much and I am not falling. I am not depressed as I use to be. I stand but I don't really to walk until my husbands home.I would like to share more with you. take care hope to from you more. Kansas The email group is a community of women and men, all ages and stages of life, who share their experience, strength and hope with each other that they may exchange ideas and solutions for living more positive lives with Charcot Marie Tooth Disease. The only requirement for membership is to have CMT or know someone with CMT. Persons in the early stages of diagnosis are also welcome, as are medical professionals. is not allied with any sect, denomination, politics or institution; does not wish to engage in any controversy, neither endorses or opposes any causes. There are no dues or fees required for membership or participation in our discussions. Quote Link to comment Share on other sites More sharing options...
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