Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Don, very interesting philosophy especially this interpretation " I've taken that to mean that if I don't change my level of exercise I won't contribute to the worsening of my symptoms. " My exercise does revolve - I get bored sometimes, and need to do something different. Like for a time last year we were doing salsa dancing in the pool. Your comment on coordination interested me too - believe it or not, my aquatics also incorporates balance and coordination movements. Being in a pool is so easy for me; I like it and since I am just a born water rat am open to new moves. This week has been much cooler and I have started some yardwork - pruning and first Fall cutting, also weeding. That's joy to me also - being in the garden, even pulling weeds; and pausing long enough to look at the intensity of the sky or watch hummingbirds buzz my dogs. It is also wonderful to be able to be out in the sun and enjoy the Vitamin D without 90 degree plus weather. It seems in all my exercise, I am really focused on the " NOW " of it all - not thinking ahead, planning anything, etc. It really does have good effects. I am finally going to get to try sea kayaking - but not until January. The worst that can happen is I'll tip over lol - the PTs said if I can find a kayak to use, they will let me try it out in one of the pools (we now have 2) so I can get used to paddling and tipping over in a current. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Don, Some forms of fitness and exercise are wonderful, but for what it's worth my Dr. told me the worst thing you can do is lift weights. I was a meat cutter, lifting all the time. They said that is the worst thing you can do. It weakens the muscles alot faster. Save your muscles as long as you can. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 you are not to preachy just reassuring. I work out in water regularly which is amazing to my friends because I can loose my balance and fall down a lot but when they see me working out in the water they think I hve a lot of courage. actually I am just doing some exercising so I can keep on walking . I wear knee pads and elbow pads when I walk my little dog for more exercise. all of us can do something. thanks for the pep talk. Cathleen in Arkansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 I'm glad you responded. I've also wanted to respond to the fitness/exercise question for some time. I see a trainer 3 times a week for resistance training. Chest and Back, then Legs, then Shoulders and Arms. He knows I have CMT and has worked with other people with neuromuscular diseases. I'm not lifting nearly as much as some other people in the class can, but he works me harder than I would work myself. I work hard enough to be sore, but not in pain. And it seems to be working for me. I have my lean muscle percentage measured once a month as a check to make sure that I am not doing more damage than good. For the past 5 months, my lean muscle weight has slowly, but steadily gone up. I figure as long as I am moving in the right direction lifting weights can't be a bad thing. I know we are all different, but I just wanted to point out that resistance training doesn't have to be completely avoided if you have mild symptoms and work with someone who is knowledgeable about neuromusclar diseases. heather in ohio Quote Link to comment Share on other sites More sharing options...
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