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Moderator's Message

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Dear ers,

Once again I am reminding you of sharing your experience here. This is

why was created. In sharing opinions we get into flames and the

results do not help us learn about CMT. If we start out with " in my

experience " or " this is my experience " , there is no right or wrong, but

what CMT is like for YOU.

No one of us (myself included) can speak for all of us. But we can all

share the many faceted aspects of life with CMT, and thereby increase

our collective knowledge of this disorder.

I have seen lists come and go, fights break out, opinions given, people

attacked, and more unbecoming ugliness.

is here for us to learn - from our own experience, and that of

others. I know it is difficult, but the creation of a place of " positive

sharing " is that of . Certainly I realize we are in pain, or have

bad days, or just want to vent. But please, let's remain a place of

peace and knowledge.

~ Gretchen/Moderator

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