My introduction

[Guest guest]

Hi

My name is Christin Lowery I am 38 yr old female and have

just been diagnosed with CMT..... I have a 16 yr old daughter

who is unaffected... Since I am new at this I really don't have

a lot of info.. I know I hurt most of the time I have been

limited to the things I can do If it involves stairs Forget It!!

!!! The doctor at the MDA Clinic increased my neurontin. Also

put me on Elavil @ Hs I don't sleep at night because my feet

hurt and I am tired through out the day.... I feel that people

think I am lazy because I rest every time I get a chance....I

am a nurse and I am on my feet a lot.... I work 12 hour shifts

so I can be off more days in a row in order to stay home to

recoup.....I get so aggravated especially at myself because I

can not do the things I used to do.... Now I can not even take

a bath because I can not stand up from the tub......I tried to

take a bath the other day and could not get out I had to sit

there forever to rest and finally was able to throw my leg over

the side and push myself up to sit on the edge. My knees are

scratched and brised from several attempts to stand... I trip

and fall a lot.. Thank God it is at home so no one can see me

struggle to get up.... I know the day to fall in public is

close.. I can cry when I think of how I want to do things and

can't. Partly because of physically not being able to and fear

of what might happen if I fall... This is all so new to me I do

not mean to be so negative but today is not a good day I am

hurting more today... I am also waiting to have a shower chair

and potty lift to be delivered... I guess I just feel bad....

Thanks for letting my vent some....Bye for now

Christin