Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Gretchen, Thank you for sharing your story with me. More questions now - I know they never end :-). I was under the impression that epidurals were dangerous for people with CMT. In fact I am/was entertaining the idea that could be why I'm having so many problems with my hip and sciatic nerve (right side). Is this information wrong - or does it just depend on the individual and it's a risk/gamble that one must decide for themselves to take? Do you have literature or a website that may give me more information on this? Thanks again - I'm sure at some point I'm going to drive you crazy with all this - although I hope not. Lord knows I owe you dinner at the very least if you're still coming out to Denver in November (for a conferance I believe you mentioned going to) for all your help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 , My anestheiologist for the epidural injections knew CMT and said there would be no problem. I researched them a bit on my own and found nothing on CMT and back pain epidural injections in the National Library of Medicine. Now, recently I have learned that cortisone injections can weaken muscles, but these epidurals went into the base of my spine. The series of 3 was done in a sterile outpatient hospital setting, in a private ER type room with a nurse present. I had to wear a hospital gown (yuck) and curl up like a cat. First came a local anesthetic, then the epidural injection. Then lie flat for 1/2 hour. Then I went home. This doc was great and even called me between injections to see how I was doing. I regret that I don't have a website or literature on epidurals for CMT/back pain. All I have is a website for Diskcure. It was awhile back, so I don't have anything bookmarked. The epidurals had no adverse effect on my CMT, muscles or nerves. I don't know if the info you got is wrong or not, but I was not adversely affected in anyway. Just dissappointed the injections didn't work! Would love to meet for dinner when I'm in Denver! ~ Gretchen Quote Link to comment Share on other sites More sharing options...
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