Neurontin/progression

[Guest guest]

G. Vance,

The second day I was on Neurontin I had relief. I was what is called an

'instant responder'. About 1/3 of those taking it are. Another 1/3 find

relief in a few months, and another 1/3 find no relief. This is from my

previous research on N.

As for my progression - it has been very slow. Have lived with CMT since

childhood and was full of worry, and never dreamed I would live to be

50! (lol) I had a rough time with CMT symptoms in high school and

college - I am sure my drinking didn't help much, except helped me cope,

or so I thought. Once I got sober and started to take care of myself and

be an adult, things seemed to be better.

I am active, in a aquatics fitness program, bike, snorkel, travel, work

as a writer, lead a very full life. Never remember seeing the peroneal

muscle in my legs. But my other leg muscles and nerves have compensated

for that. It is wierd when people tell me I have great legs - I think

that is just from aquatics, walking, and the bike. Have built up other

muscle too.

As for hands, they are OK - just get tremors - the essential tremor I

have is helped with Elavil/amitriptyline which also helps nerve pain.

Have learned not everything in front of me has to be done at once, have

learned to rest when I need to, eat when I'm hungry, pace myself, and

get 9 hours of sleep a night.

~ Gretchen