Introduction + Thank you for the invitation

[Guest guest]

Hi everyone. My name is Susi and I was diagnosed with CMT in 1976. I

am 52 now. I never learned what type of CMT I have. My dad has it

very bad and a couple of years ago my daughter found out that she has

it. My right foot and ankle is the worse. I can't move it, it just

hangs there. I've been very stubborn about wearing AFOs because they

hurt after awhile. I just had a new one ordered last week. Part of my

problem is that I have Congestive Heart Failure and my feet and legs

swell up which puts pressure on the brace.

I live in Tuolumne, California. A very tiny town with a population of

1.750. Because of my health I can't work full time but I am a

volunteer at the Mother Lode Christian School thrift store. I work

there 3 days a week plus work nights once in awhile. I love it and it

gets mne around people once in awhile.

Thank you again for the invitation and i can't wait to meet everyone

here.

Susi