Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 I'm still new here and haven't been very active yet. I've been sitting back and reading, trying to take it all in. I'm thrilled to have found this site and learn about others who are going through similar circumstances. My husband feels that because I have CMT 3, it is so different and that I am focusing too much on it. I've used crutches since I was a little girl, but never considered myself to have a handicap. Now that I am getting older, I am slowing down and it is getting harder to do things. I've even found someone from another list who has CMT 3, which is extremely rare. For me it's just nice to know I'm not alone in this. My husband doesn't get it! He told me tonight that he's tired of listening to me talk about all that I'm learning here. I've found a CMT support group that meets here in my city, and they meet tomorrow. My husband doesn't think I'll get much out of it, because I'm " so different " from the typical CMTer. He says he'll go in order to make sure I get there safely. (Arrrrrgh!!) He just wants me to find a good neuro and get the " scoop " about my prognosis. I'm so hurt right now, and I don't understand--he's always been my biggest advocate. Well, I am going tomorrow--with or without him. Thanks for letting me vent. Barb Quote Link to comment Share on other sites More sharing options...
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