Re: What is meant by mild CMT

[Guest guest]

I feel that I also have " mild CMT " . I pretty much live a

normal life. I just trip a lot and have learned how to fall

gracefully. I don't have problems at all with my hands. I

call this CMT thing " The fear of the unknown " . This whole

thing has messed with my head more the disease actually has.

Pam

[Guest guest]

Hey There Gretchen:

I've been termed with " mild " in the past. When I went to a doctor

regularly for CMT, they had always told my family that I had a mild

form of it (ie that I probably wouldn't end up in a wheelchair or

severely limited in my mobility). While I have the high arches and

problems associated with CMT, etc, my doctors felt at the time that

my path would basically follow the path of my mother who also has

CMT.

Now that I am a bit older and haven't seen a doctor for CMT in

nearly 10 years, my path has not necessarily followed that of my

mother's. I fall much more frequently than she does and can only

wear " Kung Fu " shoes. " My " CMT is definitely more severe than my

mother's, but I'm not severely limited in what I can do.

So, to tell you the truth,I don't know what to make of that term.

Yet, when I read the postings of others on this site, I definitely

feel as if I have a milder form or that I have not degressed as

much as I should have.

I hope that this clarifies anything.

[Guest guest]

In a message dated 9/22/2003 10:32:57 AM Pacific Daylight Time,

liliwigg@... writes:

> Dear ers,

>

> In reading over posts, I see CMT being 'referred to' as " mild " . I am

> curious just what is meant by this. If you believe your CMT is

> considered " mild " , please fill me in. And has a medical professional

> ever used the term " mild " in describing you? Do you just consider your

> CMT as " mild " in relation to your activities or abilities?

I actually asked my doctor what degree he thought I was effected. He said I

am average. Actually he used another word but I forgot what it was.

Over the years I have met what I consider mildly effected CMT people. To me

its not needing afos, not having had any surgery, being able to walk without

thinking about each step. Basically to me Mild CMT would be a nuisance in life

but not really interfering with life. CMT has been explained to me like

deafness. You can be so hard of hearing you can't hear any sound at all. Or you

can

be so slightly hard of hearing you don't even notice it. Or all the ranges

in-between.

[Guest guest]

I am what you would consider mildly affected. I have had

no surgeries, no AFOs, no braces or meds. You descibed it

exacltly right , when you called it a nuisance. I can still

get around on my own steam, my balance is affected due to

the extreme hammer-toes I have and I experience frequent

numbness in my arms and legs. Basically I trip a lot, and

drop things a lot, but I do not look like the

stero-typical disabled person.

Jenn