Paolo's book Review by Gretchen

[Guest guest]

Deb and others, here is the review I wrote:

BOOK REVIEW – by Gretchen Glick of

The very title of Dr. Vinci’s monumental work speaks of hope. Then this

book clearly presents a host of ideas for a major two-fold

‘rehabilitation management’ protocol of our shared disease in three

separate sections.

" Rehabilitation Management of Charcot-Marie-Tooth Disease " by Paolo

Vinci, MD, is dedicated ‘to the patients’ and takes us on a definitive

120 page tour of greater understanding. Unique to this literary creation

is that Dr. Vinci, himself, has CMT.

Readers will first find an extensive course of anatomy and physiology of

the motor system explained in simple, yet direct terms. Learning from

diagrams and color photographs, the book explicitly teaches us about

neuro-motor movement.

In the second section, pathogenesis, we learn what happens with muscles

and nerves in CMT. Also included are topics on sensation, functional

impairment, reasoned therapy and severity of the disease that include

balance impairment, as well as muscle and joint alterations.

Continuing in this section, Dr. Vinci discusses both demyelinating and

axonal forms and explains exactly how each happens with easy to

understand illustrations. Re-innervation, compensatory mechanisms – such

as collateral sprouting and muscle hypertrophy are highlighted.

This second section concludes with notes on reasoned therapy and the

beginning of hope for CMT symptom management.

The third section of this book is of the greatest value, as we now have

the

background on which to manage CMT. Highlights include goals, improvement

of strength, reduction of fatigability, balance improvement, prevention

and treatment of deformities, promotion of mobility, prevention of falls

and methods of evaluation. Both foot and hand function is covered as

well. Again, color photographs are plentiful and greatly increase

understanding of protocols.

Perhaps the most overlooked area of CMT is the solution of psychological

problems and Dr. Vinci’s book dares to delve into acceptance, relational

skills, embarrassment, loneliness, depression and procreation issues. He

encourages those with CMT to join Internet email groups and specific

support groups, as these “can improve acceptance of

the disease and encourage socialization”. (pg. 119)

This book concludes with a section on prevention and treatment of knee

pain, low back pain, metatarsal pain, neuropathic pain.

Two important contributors and extensive references make this book

( " Rehabilitation Management of Charcot-Marie-Tooth Disease " by Dr. Paolo

Vinci) a work of profound integrity and truth, leading ALL with CMT,

their families and friends toward a beauty that is hope.

http://www.aicmt.org/BOOKS.htm

[Guest guest]

--Thank you - I have been searching for the book and so far am unable

to locate it either in a library or for sale. Have you read the book

by Lovelace or the book by which is the Official Patient's

Handbook and is available for sale? I will continue to look for the

Paolo Vinci book.

Deb

- In , Gretchen Glick <liliwigg@s...> wrote:

> Deb and others, here is the review I wrote:

>

>

> BOOK REVIEW – by Gretchen Glick of

>

> The very title of Dr. Vinci's monumental work speaks of hope. Then

this

> book clearly presents a host of ideas for a major two-fold

> `rehabilitation management' protocol of our shared disease in three

> separate sections.

>

> " Rehabilitation Management of Charcot-Marie-Tooth Disease " by Paolo

> Vinci, MD, is dedicated `to the patients' and takes us on a

definitive

> 120 page tour of greater understanding. Unique to this literary

creation

> is that Dr. Vinci, himself, has CMT.

>

> Readers will first find an extensive course of anatomy and

physiology of

> the motor system explained in simple, yet direct terms. Learning

from

> diagrams and color photographs, the book explicitly teaches us about

> neuro-motor movement.

>

> In the second section, pathogenesis, we learn what happens with

muscles

> and nerves in CMT. Also included are topics on sensation, functional

> impairment, reasoned therapy and severity of the disease that

include

> balance impairment, as well as muscle and joint alterations.

>

> Continuing in this section, Dr. Vinci discusses both demyelinating

and

> axonal forms and explains exactly how each happens with easy to

> understand illustrations. Re-innervation, compensatory mechanisms –

such

> as collateral sprouting and muscle hypertrophy are highlighted.

>

> This second section concludes with notes on reasoned therapy and the

> beginning of hope for CMT symptom management.

>

> The third section of this book is of the greatest value, as we now

have

> the

> background on which to manage CMT. Highlights include goals,

improvement

> of strength, reduction of fatigability, balance improvement,

prevention

> and treatment of deformities, promotion of mobility, prevention of

falls

> and methods of evaluation. Both foot and hand function is covered as

> well. Again, color photographs are plentiful and greatly increase

> understanding of protocols.

>

> Perhaps the most overlooked area of CMT is the solution of

psychological

> problems and Dr. Vinci's book dares to delve into acceptance,

relational

> skills, embarrassment, loneliness, depression and procreation

issues. He

> encourages those with CMT to join Internet email groups and specific

> support groups, as these " can improve acceptance of

> the disease and encourage socialization " . (pg. 119)

>

> This book concludes with a section on prevention and treatment of

knee

> pain, low back pain, metatarsal pain, neuropathic pain.

>

> Two important contributors and extensive references make this book

> ( " Rehabilitation Management of Charcot-Marie-Tooth Disease " by Dr.

Paolo

> Vinci) a work of profound integrity and truth, leading ALL with CMT,

> their families and friends toward a beauty that is hope.

> http://www.aicmt.org/BOOKS.htm

[Guest guest]

Hi Gretchen:

Thank you very much. You are such a wonderful resource for all of us. I

ordered the book on line this morning, and received confirmation that I

should expect the book by registered mail within 2 - 3 weeks.

I look forward to reading and learning more about how to manage my CMT.

Thanks again and kindest regards,

Beckingham

Corporate Nice Guy

dgbeckingham@...

(519) 832-3225

----- Original Message -----

From: " Gretchen Glick " <liliwigg@...>

" ers at groups " < >

Sent: Wednesday, August 27, 2003 2:32 PM

Subject: Paolo's book Review by Gretchen

> Deb and others, here is the review I wrote:

>

>

> BOOK REVIEW - by Gretchen Glick of

>

> The very title of Dr. Vinci's monumental work speaks of hope. Then this

> book clearly presents a host of ideas for a major two-fold

> 'rehabilitation management' protocol of our shared disease in three

> separate sections.

>

> " Rehabilitation Management of Charcot-Marie-Tooth Disease " by Paolo

> Vinci, MD, is dedicated 'to the patients' and takes us on a definitive

> 120 page tour of greater understanding. Unique to this literary creation

> is that Dr. Vinci, himself, has CMT.

>

> Readers will first find an extensive course of anatomy and physiology of

> the motor system explained in simple, yet direct terms. Learning from

> diagrams and color photographs, the book explicitly teaches us about

> neuro-motor movement.

>

> In the second section, pathogenesis, we learn what happens with muscles

> and nerves in CMT. Also included are topics on sensation, functional

> impairment, reasoned therapy and severity of the disease that include

> balance impairment, as well as muscle and joint alterations.

>

> Continuing in this section, Dr. Vinci discusses both demyelinating and

> axonal forms and explains exactly how each happens with easy to

> understand illustrations. Re-innervation, compensatory mechanisms - such

> as collateral sprouting and muscle hypertrophy are highlighted.

>

> This second section concludes with notes on reasoned therapy and the

> beginning of hope for CMT symptom management.

>

> The third section of this book is of the greatest value, as we now have

> the

> background on which to manage CMT. Highlights include goals, improvement

> of strength, reduction of fatigability, balance improvement, prevention

> and treatment of deformities, promotion of mobility, prevention of falls

> and methods of evaluation. Both foot and hand function is covered as

> well. Again, color photographs are plentiful and greatly increase

> understanding of protocols.

>

> Perhaps the most overlooked area of CMT is the solution of psychological

> problems and Dr. Vinci's book dares to delve into acceptance, relational

> skills, embarrassment, loneliness, depression and procreation issues. He

> encourages those with CMT to join Internet email groups and specific

> support groups, as these " can improve acceptance of

> the disease and encourage socialization " . (pg. 119)

>

> This book concludes with a section on prevention and treatment of knee

> pain, low back pain, metatarsal pain, neuropathic pain.

>

> Two important contributors and extensive references make this book

> ( " Rehabilitation Management of Charcot-Marie-Tooth Disease " by Dr. Paolo

> Vinci) a work of profound integrity and truth, leading ALL with CMT,

> their families and friends toward a beauty that is hope.

> http://www.aicmt.org/BOOKS.htm

>

>

>

> The email group is a community of women and men, all ages and stages

of life, who share their experience, strength and hope with each other that

they may exchange ideas and solutions for living more positive lives with

Charcot Marie Tooth Disease. The only requirement for membership is to have

CMT or know someone with CMT. Persons in the early stages of diagnosis are

also welcome, as are medical professionals. is not allied with any

sect, denomination, politics or institution; does not wish to engage in any

controversy, neither endorses or opposes any causes. There are no dues or

fees required for membership or participation in our discussions.

>

>