Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 from Dale, Mom to Katy, CVID, grown Patty, I couldn't get the link to work. Would you check it, please? Thanks, dale Pattie Curran wrote: > > > http://shwachmandiamondamerica.org/cgi/wp/wp-content/uploads/2009/01/sdajanf > <http://shwachmandiamondamerica.org/cgi/wp/wp-content/uploads/2009/01/sdajanf> > eb09-newsletter.pdf > > ph's article is here with mine-Mine is simply titled looking on the > Bright Side, hence the reason ph wanted his to be titled the BRIGHTER > side.. > > I send this not for my articles.but there are several very good articles in > this newsletter-one is 's story. She developed sepsis as an infant > and almost died. She survived and had to have her toes amputated and the > sepsis caused damage.her one leg turned, etc. She had a bone marrow > transplant several years ago and this past summer had her leg amputated. > She is doing amazingly well and I think you will find her story inspiring. > > I have been blessed to meet so many amazing people on the journey we call > SDS Highway 101. God has blessed us with an amazing SDS family and I > wanted to share them with you this morning! Perhaps you are dealing with a > life-threatening illness or know someone who is..these children are an > inspiration to us all. If you would like to read past issues, we have the > back issues of the newsletters posted on our website (link to follow). We > have many children who have written articles-the SDS children themselves and > their siblings. http://shwachmandiamondamerica.org/newsletter.html > <http://shwachmandiamondamerica.org/newsletter.html> > > Peace be with you, > > Pattie > > Mom to age 14, healthy, age 12, Shwachman-Diamond Syndrome and > ph age 11, Shwachman-Diamond Syndrome > > Our family website: <http://www.shwachman.50megs.com > <http://www.shwachman.50megs.com>> > www.shwachman.50megs.com > > Cleopatra's Blog: http://www.somewhereinegypt.blogspot.com > <http://www.somewhereinegypt.blogspot.com> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 http://www.shwachmandiamondamerica.org/cgi/wp/wp-content/uploads/2009/01/sda janfeb09-newsletter.pdf It seems to come through all jumbled. This one above worked for me. if you would like to read it, I can send you the pdf file in an attachment. Otherwise you can go to www.shwachmandiamondamerica.org <http://www.shwachmandiamondamerica.org/> then click on the newsletter link on the left menu then on the January/February 2009 link and it pops up Sorry about that. I think scrambled it! Peace be with you, Pattie Mom to age 14, healthy, age 12, Shwachman-Diamond Syndrome and ph age 11, Shwachman-Diamond Syndrome Our family website: <http://www.shwachman.50megs.com> www.shwachman.50megs.com Cleopatra's Blog: http://www.somewhereinegypt.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 Beautiful. Thanks for sharing. I passed it on to a friend. @...: catholicmomof3@...: Fri, 9 Jan 2009 14:52:04 -0500Subject: Re: Inspiration for today http://www.shwachmandiamondamerica.org/cgi/wp/wp-content/uploads/2009/01/sdajanf\ eb09-newsletter.pdfIt seems to come through all jumbled. This one above workedfor me. if you would like to read it, I can send you the pdf file in anattachment. Otherwise you can go to www.shwachmandiamondamerica.org<http://www.shwachmandiamondamerica.org/> then click on the newsletterlink on the left menu then on the January/February 2009 link and it pops upSorry about that. I think scrambled it! Peace be with you,PattieMom to age 14, healthy, age 12, Shwachman-Diamond Syndrome andph age 11, Shwachman-Diamond SyndromeOur family website: <http://www.shwachman.50megs.com>www.shwachman.50megs.comCleopatra's Blog: http://www.somewhereinegypt.blogspot.com[Non-text portions of this message have been removed] _________________________________________________________________ Windows Live™: Keep your life in sync. http://windowslive.com/explore?ocid=TXT_TAGLM_WL_t1_allup_explore_012009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 Pattie, how wonderful. I can only pray I will instill such an outlook in Mark as he grows older. That is something to treasure. Best wishes, mom to Mark 7 CVID > > > Beautiful. Thanks for sharing. I passed it on to a friend. > > @...: catholicmomof3@...: Fri, 9 Jan 2009 14:52:04 - 0500Subject: Re: Inspiration for today > > > > http://www.shwachmandiamondamerica.org/cgi/wp/wp- content/uploads/2009/01/sdajanfeb09-newsletter.pdfIt seems to come through all jumbled. This one above workedfor me. if you would like to read it, I can send you the pdf file in anattachment. Otherwise you can go to www.shwachmandiamondamerica.org<http://www.shwachmandiamondamerica.org /> then click on the newsletterlink on the left menu then on the January/February 2009 link and it pops upSorry about that. I think scrambled it! Peace be with you,PattieMom to age 14, healthy, age 12, Shwachman-Diamond Syndrome andph age 11, Shwachman-Diamond SyndromeOur family website: <http://www.shwachman.50megs.com>www.shwachman.50megs.comCleopatra's Blog: http://www.somewhereinegypt.blogspot.com[Non-text portions of this message have been removed] > > > > > > _________________________________________________________________ > Windows Live™: Keep your life in sync. > http://windowslive.com/explore? ocid=TXT_TAGLM_WL_t1_allup_explore_012009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2009 Report Share Posted April 19, 2009 Get more inspiration today. http://global-solution.blogspot.com Have a nice day. Quote Link to comment Share on other sites More sharing options...
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