Guest guest Posted May 12, 2003 Report Share Posted May 12, 2003 My daughter just turned 8 and was diagnosed with CMT (Type 1) over a year ago. She has always been a tiptoe walker. She's had orthos and braces to try and stretch the heel cord....physical therapy...nothing has made a noticeable improvement. Her doctor at Children's Hospital in Pittsburgh, PA is recommending heel cord surgery to lengthen the heel cord. Does anyone have any experience with this? I'd appreciate any input or advice anyone has. Additionally, do you think it would be wise to obtain a second opinion before surgery? Thanks to anyone responding. Benzo Quote Link to comment Share on other sites More sharing options...
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