Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 Now this is some good news! Way to go! Have done only part of this myself. Congratulations! What's next? ~ Gretchen REPettit wrote: > > I did it, well sort of. ;-) The goal was a 5 mile hike. Angel's > landing in Zion National Park. It is strenuous and a long haul, but I > got as far as my wife would let me go. Hehehe. I made it to Scout's > Lookout. A 2 mile n(4 mile round trip) 1,000 foot elevation change > hike. The view is absolutely stunning. I took a long time and > received major support from my wife every step of the way, some times > it was verbal and occasionally physical (she kept me from falling off > the trail more times then I care to admit). The last half mile is > almost vertical rock climbing, and my wife who is afraid of heights > was not about to go there, and with my balance she wasn't letting me > go either. I came up with a new mantra on the way. B-B-F-G " Breath > in - Breathe out - Fall down – Get up. When I got tired I mentally > kept that going through my head. The point is, that with > determination the disease does not have to beat you! I will have > some photos online later. I also got lots of encouragement from > fellow hikers who noticed my slow process up and down the mountain. > I did it!!! Find your mountain and go climb it!!!! > > > For a look at Rehabilitation Management of CMT, try this book http://www.aicmt.org/books.htm > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 CONGRATULATIONS!!!!!!!!!! What a great achievement. Next Time I walk for Relay for Life I will remember BBFG. cathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Hi April, I am so glad to hear that you are doing well. Things are looking up from here on out. > > I had my explant with Dr. Melmed on February 4th. The surgery went > well, no complications. He removed 90% of the scar tissue, the rest > was too paper-thin and attached to the ribcage. I am pretty flat and > deflated, but I know that will change in the following months. I've > felt pretty good, just very tired and sore. I didn't have to take > any RX pain meds (just Tylenol), so I was very thankful for that. > > My main complaint is that yesterday and today my head has been > hurting and I've felt what seems like sinus pressure and a little > dizziness. And I've also had some sinus drainage. I've been fighting > a fungal sinus infection forever, and I'm wondering if getting the > implants out is already breaking some stuff up in my sinuses? I > don't know, but it feels pretty aweful. ( > > Thanks to all of you for the great info here. I know I wouldn't have > had the courage to do this without this group and others like it. > > To those of you who are still considering this surgery, or just > waiting for your surgery date to come around - have no fear. I was > pretty worried about it. But with prayer, an awesome surgeon, and a > great hospital staff, it really was a good experience. I'm so > thankful it is behind me and I can finally start getting healthy. > > Blessings, > April > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 > > April- How weird, I was JUST thinking about you and wondering what > was going on with you! It's good to hear from you and even better to > hear that your surgery is over!!! Woo Hoo!!!! See, I told you all > along that you had nothing to worry about! Now, you can start > concentrating on healing and getting your health back!! > I was dizzy and headachy for the first couple of weeks after surgery, > so just take it REAL easy. Surgery is tough on the body and you are > probably still fighting that infection. Make sure you are taking > vitamin C and drinking LOTS of water. > I'm so happy for you!!! > Love, Krista > Thanks, Krista. Wow, that's so sweet of you to think of me! ) So you were dizzy and headachy, too? I read somewhere that the effects of general anesthesia can last for several days, and even more than that if your body has a hard time filtering out the drugs. My other thought was that the blood loss may be causing me to feel this way. I didn't lose lots of blood, but I had my period right before the surgery, and did lose some blood afterwards (I had drains). My husband said since I'm a pretty small girl it could have an effect on me. I do tend to be a little anemic anyway, so I guess that's possible. I'm back on my multi-vit today and it has chelated iron, so hopefully that will help. Oh and yes, I'm taking vit C and have also started back on some of my other supplements. It is such a relief to know that the things that I do for my health now aren't being sabotaged by having those foreign/toxic things in my body. Yay! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 April,You might try swabbing the inside of your nose with an antifungal ointment . . . like that used for jock itch . . . It works fast!Chances are the antibiotics you were given during surgery prompted the fungus stuff to grow.Hugs,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Congrats April!!!!! You are well on your way to healing. I am so glad the surgery is behind you now!!!!! Much Love, Beth I did it!!! I had my explant with Dr. Melmed on February 4th. The surgery went well, no complications. He removed 90% of the scar tissue, the rest was too paper-thin and attached to the ribcage. I am pretty flat and deflated, but I know that will change in the following months. I've felt pretty good, just very tired and sore. I didn't have to take any RX pain meds (just Tylenol), so I was very thankful for that. My main complaint is that yesterday and today my head has been hurting and I've felt what seems like sinus pressure and a little dizziness. And I've also had some sinus drainage. I've been fighting a fungal sinus infection forever, and I'm wondering if getting the implants out is already breaking some stuff up in my sinuses? I don't know, but it feels pretty aweful. (Thanks to all of you for the great info here. I know I wouldn't have had the courage to do this without this group and others like it.To those of you who are still considering this surgery, or just waiting for your surgery date to come around - have no fear. I was pretty worried about it. But with prayer, an awesome surgeon, and a great hospital staff, it really was a good experience. I'm so thankful it is behind me and I can finally start getting healthy.Blessings,April Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 > > April, > > You might try swabbing the inside of your nose with an antifungal ointment . . . like that used for jock itch . . . It works fast! > > Chances are the antibiotics you were given during surgery prompted the fungus stuff to grow. > > Hugs, > > Rogene > Thanks, Rogene. I never thought of doing that. I have some Olive Leaf Nasal Spray and I started using that again today and I think it may already be helping. Luckily I wasn't given any antibiotics during surgery so I won't have to deal w/reprocussions from that. I'm taking vit C, olive leaf and probiotics, so that should help keep away any infection from the surgery. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 April,I'd be very, very surprised if you weren't given antibiotics in an IV . . . They're pretty much standard practice for any surgery . . . and, considering all the stuff you can catch in a hospital setting, probably a good idea.Rogene Quote Link to comment Share on other sites More sharing options...
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