doubt on treatment

[Guest guest]

Hello people,

Somebody told he is wearing an in-a-shoe orthotics that was custom

made by an orthotist at http://www.swissbalance.com.

Concerning to myself my thighs are very weak, I'm loosing my

balance, I'm having muscle cramps, fatigue when walking, falling

down

very easily and I'm felling a very sharp pain all throw the left

side

of my body.

Up to my 45 years CMT didn't affect me very hard. However in the

last

five years is getting worse and I have been forced to stop doing many

things I used to do. Why is it so? In the further years would CMT

affect even more?

Do you have any sort of information about going to Italy to see Dr.

Paolo Vinci? Is the treatment expensive at the

Hospital " L.Spolverini " ?

Sincerely yours,

Murilo Lion.

[Guest guest]

Murilo,

We are all different in the way CMT affects us. I shared my experience

with you on wearing in-shoe orthotics from SwissBalance. As I have

previously shared, most of my CMT issues are feet related. The orthotics

DO help with balance and also fatigue when walking. I fall maybe 2 or 3

times a year. I do not have muscle cramps. Wearing the orthotics helps

me very much. I understand your doubt. It is hard to describe CMT

sometimes and how I am affected. I would have to say I suppose I am

midly affected. I am 50 now.

CMT is a progressive disease, but again, the progression varies

depending on the individual. Others with CMT wear AFOs that help them

walk.

Perhaps first read Dr. Vinci's book, then contact him regarding

treatment. The book explains treatment. Here is the link

http://www.aicmt.org/books.htm In our photos section I have placed

pictures of the footdrop boots.

~ Gretchen