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Re: Welcome Patti

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hi Gretchen - thank you. Patti

----- Original Message -----

From: Gretchen Glick

Sent: Monday, June 23, 2003 8:45 PM

Subject: Welcome Patti

Welcome Patti,

Yes, a diagnosis of CMT can be shocking news, but over time, the

acceptance will come. Thank you for introducing yourself to the group.

I was diagnosed as a 10 year old child - the news was pretty shocking

and confusing even then! I didn't do much about the life changing part -

I just grew up with it as part of my total package!

About 5 years ago I took a chance and started because I wanted to

learn more about CMT in an upbeat and positive manner. And I keep

learning :)

Remember, you don't have to tell anyone or everyone. Let your conscience

and your heart be your guides; CMT is not a form of MD, it is not MS or

other neurological disorders. It is unfortunate CMT has a long history

and still not known to the general public. Many people are working on

this though on several levels.

I hope you enjoy the group and find strength here.

~ Gretchen

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