telling family + employers/carriers of CMT

[Guest guest]

Hello to all the new members and welcome,

I have Type X. When my late wife and I were dating,

I told her about my CMT and the genetic linkage. We

had two beautiful twin daughters. My girls have Type X;

however, they have been asymtomatic. My girls are also

carriers of CMT.

We told the girls about CMT once when they were 8 and I

told them again when they were 15 (different versions

for age appropriateness). It was harder to tell them

when they were 15 - (my wife passed away when they were

10), so I did all the talking, answering questions, etc.

Since then, they have grown eager to know more and one is

now extremely interested in family genealogy. With their

jobs, summer school and the beach, dear old Dad is sort of

on his own to be with my " cronies " as the girls say. But

the 3 of us were able to get away for 10 days of " family

time " before summer started, so I'm not complaining.

I do feel it is important to tell your children about CMT

and do this at different times in their lives. This worked

for me/us.

In the past if I needed special accommodation in regards tot

my CMT at work, or if I needed flex time, I told my employers

about CMT. If you need something ask. Now that I am a partner

in the corp., I encourage our employees/contractors, etc. to

ask if they have a " need " regarding something like this.