Source for CMT and Marfan's-like symptoms

[Guest guest]

Hi folks;

I found the reference to Marfan's in the book I spoke of. It is

Charcot Marie Tooth Disorders, a physicians guide to treatment. It is

on page 14. Speaks of " Marfan's like symptoms " . The impetus here is

not in making a connection to Marfan's syndrome, but in relating that

CMT persons sometimes have or " appear to have " some of the same signs

and should not be " fooled " .

It is intresting to note that Marfan's is an abnormality of the 17th

chromosome but an entirely different gene than CMT1A. It is also

possible to have both. Also some of these signs can be inherited

independent of either disease.

Several of my family with CMT have SOME of these signs and to my

knowledge none without CMT, including " yours truly " . Also more than

one CMT person has now told me that their doctors had noted this. Not

including my own.

I hope this clears the muddy waters a bit!LOL

Jim Nash in Ohio