cmt and children

[Guest guest]

I don't write very often on the board, but due to the subject

matter and an incident that happened last night, I feel

compelled to share. I have been friends with this man for

about 5 years or so, and for a while it seemed that we were

interested in maybe exploring a more involved level of

relationship. Last night was my birthday and we got together

for a couple glasses of wine to celebrate. It was at this time

that he proclaimed that he could not become involved intimately

with me because the CMT bothered him too much. We both have

children about the same age from previous relationships and I

know that he would like more children. His problem is that he

is worried that if we got serious and decided to have children

together, he does not want to run the risk of having an

" unhealthy " child. I thought this man was a good person and that

we shared an unconditional friendship, but I guess that I was

wrong. My son, (now 4) has had some testing, and the

neurologist feels at this time that he does not have the gene.

If he did, I would not love him any less, but none the less I

am glad he is CMT-free. I did not intend to have children, but

Darien was a pleasant surprise in my life. I am lucky in that

I do not " seem " disabled yet, but I do have my good and bad

days. Unforntunately, there are a lot of ignorant people out

there that think MD and have visions of " crippled people in

wheelchairs " . Fortunately I do not fit the stereotype yet, and

I am still looking forward to the day that I will meet someone

who is a little less ignorant, and a little more understanding.

I am positive that there are many others out there like me who

are still looking for that person, and I thought that if I

shared this experience, they would not feel that they are the

only ones faced with this challenge. Thanks for letting me vent-

Jenn

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[Guest guest]

Holly,

Being a parent is the hardest job in the world and the worries never end, but I

agree, worry does not make it better. So i am going to wait for our doctors

appointments and just put this into the back of my brain until i have to deal

with it. Luckily, i do not see any signs and he walks perfectly. Believe me, i

have been watching his gait for 18 years!

Anyway, after receiving his 2nd speeding ticket in 1 month, dropping out of

college, and basically not showing that he is growing up yet, i have enough

worries without adding CMT into the mix!!!!!! All that will do is to give him an

excuse to continue to mess up! Thanks for responding.

Jackie