sharing ourselves

[Guest guest]

Hi Fatemeh ,

I am french woman .My name's France,my family name's benoit.

I am 30 years old. I was born by Caesarean and one (doctors) called upon an

anoxia néonatale without more precision. On a more recent date,on invooqué a

spino-cérébelleuse dégérescence more precisely an ataxia of freidreich in

1988 but this one at summer écartee by the genetics in May 2001 with the chu

of Angers(france).On also eliminated SCA1, SCA2, SCA3, SCA6 and SCA7.

In 2002 I consult Doctor andra Durr with the consultation of genetics to

the hopitale of Salpétrière Pity in Paris. Professor Durr précisement assure

me to a peripheric neuropathy a charcot-Marie-tooht ,for the moment I am on

standby to know the results of the blood tests, which will determine the

type of cmt.

I explain you now my history:

I have to start to walk at the 2 years age and half. To 6 years or 7 years I

increased gutter plasters the night of it. Until worms the 10 years age I

carried orthopedic shoes. At ten years one operates me tendons on the left

foot then at twelve years on the right foot. In 1990,je was operated one

second time on the right foot, the intervention rather worsened me. It

arrives to me of the falls by dérobements of the lower limbs but I them

control better bus from time to time I walk with canes English and then I

have a feuteille travelling handbook to rest .

In my family no case of cmt is known. My symptoms are a hypotonia, a distal

honest amiotrophie with the quatres members, a generalized tendineuse

aréflexie ostéo,un distal driving deficit. The feet are cyanic and froids.La

paralysis is abolished with the quatres members.

I hope to be able to discuss with you and to find the same symptoms here. To

change subject I find really damage that the war in Irac is place.

Melle France BENOIT

traduire /translate with http://babelfish.altavista.com/babelfish/tr

-------Message original-------

De :

Date : mercredi 09 avril 2003 22:23:53

A :

Sujet : need CMT org. in Iran

Hello Casie, Gretchen, , Pierre

My name is Fatemah. I am Iranian. I am very thankful for

replying to my father's letter. My dear friends, I should tell

you in spite of I have many problems in my life, but I am living

normally like other my family members. My parents are very kind

and they are good friends for me.

Would you please write me more about yourself and your country. I like to

hear about both of them.

Warmest regards

Fatemah Boka