Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Good afternoon France. I would be glad to introduce myself. I am a 54 year old, divorced woman. I live in Florissant, Missouri, USA. Florissant is a part of the St. Louis metropolitan area. I work full-time as a senior computer programmer/analyst. I have been in the information systems field of work about 15 years. I live alone in a single family house with 4 Greyhounds and 1 English setter. I'm active in the rescue effort for the retired racing greyhound and usually have a foster greyhound or two, in addition to my own dogs, that are looking for their forever homes as pets and companions. I, also, enjoy most music, reading and home remodeling projects. I consult with Dr. Glenn Lopate, an associate professor at Washington University, at the neurological clinic at Jewish Hospital in St. Louis. He is the one that established through medical history that I had Type 2 CMT. I had previously had many other tests, including DNA, to try and identify what was causing my neuropathy. The only abnormality found was low thyroid which has since been corrected by supplementation. CMT is inherited through my mother, now deceased. Besides myself and my mother, my sister, an uncle and a neice have been diagnosed with neuropathy. I lead a pretty normal life until I was in my early 40's. I'd always been an awkward child slow to learn to play sports and dance. For me it was often mind over matter. If I studied the movements long enough, I could visualize the movement and learn it. My right ankle started to roll inward about 7 years ago and there has been steady progress since then. I now wear AFOs due to foot drop and balance problems. My left ankle rolls outward. My balance is still not good with the AFOs but I manage okay. I do need a cane for very uneven surfaces like a park or my back yard. My hands are also affected. I do not have the fine motor skills in my hands any longer. It is difficult to button clothing, etc. Overall I do okay. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 Good afternoon, All!! Just wanted to let you know that I have really been enjoying the conversations lately. I was diagnosed with CMT at age 3. I live in land Heights, MO and also see Dr. Lopate at Jewish Hospital. Thanks all! Devin in St. Louis Quote Link to comment Share on other sites More sharing options...
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