testing your children

[Guest guest]

Geri

Only had it that one time and never again...

Luanne Ty's mom

[Guest guest]

Geri..

The kidney (left one) has staghorne stones..have to be surgically

removed..Had this done in 92...in NY..definitely no fun...Told Tyler he is

not allowed to get sick for awhile...My turn..LOL..We try to use humor a lot

around here ...you know spmetomes I laugh so hard I cry...I,m trying to find

a GI for my other problems...I heard you mention in a previous post about

having ovarian problems in the past...I have ovarian cysts..on both and GI is

the next step of tests before I have to have surgery(laporoscopy...sp) And

like all of us I'm in the waiting game...

Thanks for caring..

Luanne Ty's mom

[Guest guest]

Luanne,

It never fails to amaze me to see how often one family seems to get more

than their share of problems heaped on them, one after the other.

It's a misconception to think that the only pain from a kidney stone is

caused by trying to pass it. I had pain in my left side for more than a

year before mine was finally removed. Can't yours be removed by

lithotripsy? I realize that all of them can't. The procedure isn't that

bad but the stent afterwards caused problems for me. That's when I learned

I have a lasix allergy. I was climbing the walls!

And, ovarian cysts on top of all that? I take it they've ruled out

possible malignancy? I didn't have cysts. I had nothing but that elevated

CA 125. Nothing to biopsy and nothing to remove but my ovaries. I'm still

a little irked about it but the doctor couldn't have known I was okay.

I just learned this evening that our youngest son has a spot on one lung.

I don't want to think about the possibilities. Not now. There are many

things that can cause a spot. I had one and it was nothing. Just

disappeared, but not until I went through a lung biopsy. He totally

neglects his health, so at least this might be a wake-up call.

Hang in there, Luanne. I know that the hardest part for you is what is

going on with your kids, but it's not easy to deal with these things when

you are sick yourself and you just want to curl up in bed.

Take care,

Geri

[Guest guest]

While on the subject, how do people feel about having their children

tested for CMT. My husband is 52 and was recently diagnosed with

CMT1A. He is just starting to feel the effects of the disease. We

have 3 children (21, 17 and 13). I do not believe the 2 oldest have

it, but I have a suspicion that our youngest does. At this point he

is not showing any " signs " of it. But I can see when he walks and

runs it reminds me of my husband. My son says he doesn't care either

way about finding out if he has it. I would love to hear from others

about the pros and cons of having him tested. Heidi

[Guest guest]

In a message dated 5/24/2003 10:26:08 AM Pacific Daylight Time,

ohwell159@... writes:

> While on the subject, how do people feel about having their children

> tested for CMT. My husband is 52 and was recently diagnosed with

> CMT1A. He is just starting to feel the effects of the disease. We

> have 3 children (21, 17 and 13). I do not believe the 2 oldest have

> it, but I have a suspicion that our youngest does. At this point he

> is not showing any " signs " of it. But I can see when he walks and

> runs it reminds me of my husband. My son says he doesn't care either

> way about finding out if he has it. I would love to hear from others

> about the pros and cons of having him tested. Heidi

Hi Heidi,

I have them tested if they show signs. If they don't show signs I just hope

for the best.