Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 I'm a new member to and wanted to take a minute to introduce myself. My name is , I am 26 and I have CMT (sounds like AA - huh?). Just a little humor. Anyhow, I have a 5 month old daughter and a very understanding husband. I come from a long line of CMTer's. Starting as early back as my great-great-Grandfather - not that they knew it was CMT back then. It is a prevalent disease in my family and I was diagnosed at a young age (by symptoms - did not have DNA testing back then). Since my pregnancy my progression has increased tremendously. Until now I've never received treatment for the CMT because it has been livable (not enjoyable, but no surprising symptoms since most of my family has it). Now I am in the process of TRYING to get proper treatment. I say trying in that fashion because as I'm sure most of you know it can be difficult dealing with doctors and CMT. Now that I have an infant that needs constant care I don't have a choice but to get help with this condition. And thanks to groups like this I am receiving tons of information that is very helpful. Gretchen, I want to thank you for all you do for this group. I've been reading the posts for the past week - just now had the time to post, and the information you provide is incredible. How do you find the time for all your research? If you lived in Colorado I would drag you along to my doctor appts. Take care, Quote Link to comment Share on other sites More sharing options...
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