Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Hi Everyone! I'm Barb and have CMT Type I. I've always been told it was Dejerine-Sottas Disease and only recently found out that it fell under the category of CMT. I was misdiagnosed as an infant and believed I had a form of MD with the life expectancy of one year. The doctor's began to wonder about the diagnosis when I turned four. LOL I have poor balance, lack of coordination and sensation, and muscle weakness. Over the years, the muscles in my hands and feet have begun to atrophy--I still have good use though. I walk with crutches and wear braces (not AFOs) up to my knees, although I don't wear them at home. I am 39 and have two extremely active boys--neither of whom inherited my condition. I am a teacher by profession and a SAHM by choice. I'm PTA President and Team Mom for my son's baseball team--basically, I have too much on my plate. ) Growing up, there were so many things I was told couldn't do. Well, the words " you can't " automatically became a challenge, and I would prove them wrong. Hopefully, I inspire my children and my students to do the same. I just want to thank (MommyToAdam) for telling me about this group. I look forward to getting to know everyone here! Barb ) Quote Link to comment Share on other sites More sharing options...
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