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Welcome Ellie and Jim

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Welcome Ellie and Jim,

Welcome again and thank you for posting your introductions. I had many

neurological tests at UCLA back in the 60's and '70s and I too, have no

family history. A while back in my aquatics program, we were learning

salsa dancing in the pool. I'm a real fan of aquatic exercise.

Besides genetic testing, there is the EMG/NCV test. Did your husband

have the DNA test? http://www.athenadiagnostics.com even with that, some

types of CMT still have no test. At UCLA I had dozens more tests,

including muscle biopsy and spinal tap, but I think now those tests were

used to rule out other diseases. Perhaps once your husband is tested,

his sons might want to be tested and/or seek genetic counseling.

CMT affects us all differently in some ways. Some people are affected in

both legs and arms. Wish I could answer your last question, but no, I am

not aware of anything that can delay atrophy.

~ Gretchen

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