Guest guest Posted June 8, 2003 Report Share Posted June 8, 2003 Hi Jeff- I am Jenn and I am from Prince Island. Neighbors, eh? That's pretty buzzy... Later- Jenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2008 Report Share Posted December 22, 2008 Hi Debra, Where abouts are you in Canada are you? Thanks for the greeting and Merry Christmas and Happy New Year to you also. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2008 Report Share Posted December 25, 2008 Hi Barb, I'm in Castlegar British Columbia Canada. Are you in Canada,if so where? I do not know any one in Canada besided my family with CMT. Hope your Christmas holidays went well. Debra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2008 Report Share Posted December 26, 2008 Hi Debra, Merry Christmas and Happy New Year. Yes I am in Canada. I live in Ottawa. I had one son who had CMT also but he had CMT also. Do you have a doctor who is knowledgeable about CMT? I do not. I have a GP and a rheumatologist for my arthritis. I have been to a neurologist. He was more interested in the fact that my sciatic nerve was causiing back pain. I also have deteriorating disc disease and Pagets disease of the bone. At this point I am 72 years old and I use a and I am know looking for a Wheel chair that is heavy enough for me as I am overweight but light enough for people to put into their car. I will be going to Cuba in January and my daughter will be coming from North Vancouver to accompany me to Cuba. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2008 Report Share Posted December 28, 2008 Hi Debra: I too live in Canada. Port Elgin, Ontario on the shores of Lake Huron. Great sandy beaches in the summer (cottage country) but we have quite severe winters with the West winds coming off of Lake Huron. It is actually quite nice just now....11 degrees C or 52 degrees F and raining slightly. It has taken most of the snow away. I am originally from Saint , NB and both my younger sister and brother have CMT. I was diagnosed using DNA testing and so were my siblings. We think my father had CMT but he died very young (42). In any event a big hi from another Canadian who has CMT. I'm sure there are many of us. Regards................ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2008 Report Share Posted December 28, 2008 Happy Holidays! I'm from Mount Pearl, NL, right outside of St. 's. I got checked by a neurologist and brace people and they weren't at all interested in helping me get anything better than I have now. I was diagnosed in '92 (tho I've tripped my whole life) when I lived in New Jersey and have been wearing casted AFOs since then. I was wearing the Helios for a year or so. They were wonderful, but kept breaking. I did try the Toe-Offs, but they didn't work at all for me. My balance is really off and they only helped with foot drop. The AFOs I have now are about 10 years old and wearing well. JoAnn N. Newfoundland, Canada (originally from NJ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 Good to see people from Canada. I am from western Canada, Alberta, small town called Bowden. Red Deer is the closest main centre. I would appreciate hearing from anyone in this Central Alberta region. I have often thought a support group would be nice. Anyone out this way? Red Deer, Innisfail, Olds - all towns nearby. Anyone in these areas with CMT? Calgary is the closest large city - to the south Edmonton is to the North (I do not know Edmonton well at all) Grew up in Calgary. Even if someone in Edmonton or Calgary, I would love to hear from you and see if maybe we could meet. I find this a lonely world at times - CMT wise - I have many friends - just would love support for CMT. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Hi Barb, Sorry this is so late in coming to you. I got sick over the holidays then had computer problems. You have most likely left for Cuba by now but this will be waiting for you when you get back. I live in Castlegar British Columbia. We've had so much snow during the holidays I didn't think it would ever quit. Finally it has warmed up here so the snow is finally melting. Yes I do have a GP but I think I know more about CMT then she does. I had a very good doctor but he retired so I am stuck with this one for now. She is always on my case about my weight(She of course is very thin ( )I am about 40 bls over weight. I do use my treadmill and my bowflex as much as I can. Some days the pain is so bad that I can not even think of using the machines. I do try to push my self though. I have lost 36 lbs so far but now that I'm over 50 it is getting harder to do so. I also walk with a walker so it is slow going when I am out walking. My balance is so poor so the walker does come in handy. I use my leg brace on the treadmill so it does help. I was told I would be in a wheel chair by the age of 30 and I am now 52 and still going strong so I must be doing somthing right. I do not know for sure which CMT I have. I think it is CMT 1. Six out of seven of us have CMT. Two of us were affected with it the worst. Some of my Nieces and Nephews have CMT too. I've had a hip replacment done on the left side thirteen years ago and because of my stupidity of not wearing my leg bracing one day I fell and damaged the cup and cracked my pevis in 2001. Since it was redone I've been good. I do have a problems with the sciatic nerve not but I deal with it. We take in International students from all over the world. We usually have three boys with us at a time but I am getting a little tired so I have cut back to two. They are from Korea and Japan. I do so enjoy them in our home, I think they keep us young. We never did have children of our own due to the facted that there was a fifty fifty chance of our childern getting CMT. I went through so many surgurys when I was younger that I did not want to put our children through this. My husband was so understanding. He's a great suporter of mine. He always worries that I'm over doing it all the time and he complained to the Doc once about it and the Doc said what ever she is doing it is keeping her out of the wheel chair. But I find I do need a nap in the after noon. ) Well I guess I am getting a little long winded here so I better sign off for now. Hope you had a great time in Cuba. Take care. Debra(Canada) __________________________________________________________________ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr.com/gift/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Hi JoAnn, I am in Castlegar British Columbia, I was diagnosed when I was eight years old. I needed surgery for scoliosis and hammer toes. I too tripped all my life. When I was in my thirties I received my leg braces and as long as I wear them I do not fall any more.They are a hard plastic and ugly but I do not care as they stop me from falling and helps with the pain in my lower back. I walk with a limp as I have 1 leg shorter then the other but the braces helps to minimize this. I do walk with a walker and it helps with my balance. My walker is a bright yellow so they can see me coming.LOL bye for now. Debra(Canada) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Hi , Big hello from Castlgar BC. The weather is not to bad here now but during the Christmas holidays it started to snow and did not stop till last week. We have about six feet of snow in the yard. Hubby had to go up on the roof and take some off so it would not damage the rafters. We have not had this much snow since 96. The coldest it ever got here was minus 18, but now it is about minus 1. So lots warmer. My father to had CMT and six out of seven of us have it now. Some nieces and nephews has it also.My self and older sister has been affected by CMT the worst. The others shows small signs of it. Hope all is well in Ontario. Take care. Debra(Canada) __________________________________________________________________ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr.com/gift/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Hello , I am in Castlegar BC. I was born in OLDS ALTA.Many many many years ago. ) Grew up in Edmonton and then moved to British Columbia in the early seventies and lived here ever since. I did move to Wainwright Atla. in 1984 with hubby for about seven years then moved back to British Columbia in 1991 . If you ever want to chat with a CMTer from BC I'm here. Take care. Debra(Canada) ) __________________________________________________________________ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr.com/gift/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi JoAnn, It's me again. I need to make a correction on my last email,the surgery I had was not for hammer toe but for clubed feet. I'm not sure what I was thinking. I do need surgery on the left foot due to the hammer toes but I'm not sure I will get it done as they can not promise it will work. Any ways have a great day. Debra(Canada) Quote Link to comment Share on other sites More sharing options...
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