cover story March Magazine

June 13, 2003

For anyone who missed the March CMT Today Magazine, here is the cover

have not had a look through http://www.hereditaryneuropathy.org, please

do so. More about CMT from a new and upcoming organization.

June 15, 2003

I have just read your article CMT Today and certainly have a

lot of respect for you and your efforts to highlight CMT. At

night I suffer from cold feet, but yet like yesterday I walked

about 3 miles to follow my son who was on a float for the Boys

Brigade in the local charity gala. This is a thing I have taken

part in myself for many years as a kid, my feet just felt like

they were burning up, I got back into the car and just fell

asleep exhausted. I find the exhaustion really hard to accept,

as I told you I have competed in half marathons and one full

one. I also find it strange that I don't seem to have anything

wrong with my feet. The genetic consultant I saw said I didn't

have the classic symptom of CMT feet and it seemed to throw

him off, as if to say I don't have CMT. I've been told I run

like a chicken, but a lot of people run funny. One thing I do

find unusual is that fact that when I close my eyes and put my

hands to my side I fall over straight away and not always to

the same side. Is this common for CMT do you think? Not that I

make a habit of doing it mind you. Anyway it's Fathers day in

the UK today so I'm going to enjoy the sun, listen to Carol

King and look forward to going to the Calgary Stampede and the

Rockies next month. Love Ian.

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