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GP doesn't know CMT

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I went to see my regular doctor today to talk to him about my

concerns. Just to see what he said. He didn't seem to know much

about CMT. Only he knew a lady in a nuring home that was crippled

from the disease. Didn't even want to look at my feet/high arches.

Only hopes its not the case. Darn, my families have the doozies. I

had him test me for padgets a bone disease that crippled my mom. He

said see the neurologist upstairs. So I made an appointment with the

neurologist 2 weeks from today.

My dads family has CMT1A which they say has to come from my dad X

chomosone. Only dad doesn't have CMT. Maybe my mom has type II and

doesn't know it. She seems to exhibt alot of symptoms. (High arch,

hammer toes, curved spine etc)(Just my luck) My aunt was not

diagnosed till 60 I was told. Is this unusual?

I'm praying my symptoms will disapear by my apointment.

Today I'm having awful spasms in my right ankle. Made worse by

driving and walking today. Along with the cold feet.

Love to hear from people that were diagnosed after 35ish and up.

Like to know how you discovered your illness.

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