Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 , I'm so happy that your biopsy showed little damage. This is wonderful; your liver is doing you right. However, you know that the inflammation, unless eliminated, will cause damage eventually. Are you going to start prednisone? As I mentioned, I think the alternative approaches are great supplements in healing, but it's too risky in my opinion to not do what has shown to be most effective in stopping the inflammation (prednisone). Roxanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Roxanne, Thanks for your reply! I know I'm lucky to have caught it before any damage has been done, and that inflammation can lead to scarring. I'm seeing a liver specialist in a month, who will put me on a treatment. I'm not sure what yet. She has access to all the current treatments, and may also suggest involvement in a study. I'm not sure what I'll be able to swing financially. I have a student loan to pay back, and literally cannot afford expensive drugs (as important as they are). I'm hoping they'll be able to help me with this! I'm too afraid to rely on the herbals alone. I wish there was more research to prove them so I wouldn't have to go on these scary drugs. I'll definitely do what I need to do though. Most of my family and friends agree that I should definitely go on the drugs. The friend I went out with tonight is strongly opposed, and pro-herbal. He had the same thoughts as I did initially...better to do everything I can naturally, and possibly avoid years of pills and negative side effects. I've accepted that they are necessary though. If the herbals worked without a doubt, everyone on this list would probably be on them! Anyways, thanks for your advice. I agree with you. >From: CREE8V1@... >Reply- onelist > onelist >Subject: Re: [ ] alternative approaches >Date: Wed, 12 May 1999 18:13:09 EDT > >From: CREE8V1@... > >, I'm so happy that your biopsy showed little damage. This is >wonderful; your liver is doing you right. However, you know that the >inflammation, unless eliminated, will cause damage eventually. Are you >going >to start prednisone? As I mentioned, I think the alternative approaches >are >great supplements in healing, but it's too risky in my opinion to not do >what >has shown to be most effective in stopping the inflammation (prednisone). > >Roxanne > >------------------------------------------------------------------------ >Where do some of the Internet's largest email lists reside? > >At ONElist - the most scalable and reliable service on the Internet. >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 , I hope that money won't be an obstacle to you getting any treatment you need, but I know how rough it can be for a student. If it helps, I pay less than $7.00 a month for my Prednisone. My insurance co-pay is $10.00, so I don't even have to pay the full co-pay. I don't know how expensive Azathioprine is, but our insurance company charges the lesser co-pay for it. Those are the two most likely drugs you'll be given. Your doctor should be able to help you, but also, I believe that there is a program offered by the pharmaceutical companies that will provide medications for people who must have certain drugs to survive. I don't know much about it but your doctor might be able to help you. If not, I can help you find out more about it. I met a man in my doctor's office who was getting his medications that way. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 I too could not afford the drugs at first that were i had my break downs always in the pharmacy. Predisone is cheap, imuran is expensive and budisonde is more expensive. Imuran has just come out with a genetic brand which is a bit cheaper about $ 40 for 60 tabs. pred is like $10 for my scrip, and I have not had to pay for budisonde yet. Well as of last year I have a medical plan now threw work, but the first two years were hard. visa etc... to pay and I had to to stay healthy. The pharmacy can not deny (in canada someone there pills) they kept an account for me until I could pay interest free!! So I always owed, it's amazing what u can afford to when you have too!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 : I paid about $8.99 for Prednisone and $37.00 for Imuran when I was paying for it. Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 Geri, Thanks for the information on the cost of the meds. Maybe they won't be as much as I initially thought! >From: Geri Spang <spangs@...> >Reply- onelist > onelist >Subject: Re: [ ] alternative approaches >Date: Thu, 13 May 1999 04:28:08 -0700 > >From: Geri Spang <spangs@...> > >, >I hope that money won't be an obstacle to you getting any treatment you >need, but I know how rough it can be for a student. If it helps, I pay >less than $7.00 a month for my Prednisone. My insurance co-pay is $10.00, >so I don't even have to pay the full co-pay. I don't know how expensive >Azathioprine is, but our insurance company charges the lesser co-pay for >it. Those are the two most likely drugs you'll be given. > >Your doctor should be able to help you, but also, I believe that there is a >program offered by the pharmaceutical companies that will provide >medications for people who must have certain drugs to survive. I don't >know much about it but your doctor might be able to help you. If not, I >can help you find out more about it. I met a man in my doctor's office who >was getting his medications that way. > >Take care, >Geri > >------------------------------------------------------------------------ >The Final Countdown is here! >http://www.ONElist.com >Join the " Star Wars " craze at ONElist. >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 , I agree with you. I know I'll find a way, one way or the other, to pay for the meds. Hopefully I'll be able to find a job with a drug plan. >From: " .Hutchinson " <brandy.hutchinson@...> >Reply- onelist > onelist >Subject: Re: [ ] alternative approaches >Date: Thu, 13 May 1999 08:20:41 -0700 > >From: " .Hutchinson " <brandy.hutchinson@...> > > > >I too could not afford the drugs at first that were i had my break downs >always in the pharmacy. Predisone is cheap, imuran is expensive and >budisonde is more expensive. Imuran has just come out with a genetic >brand which is a bit cheaper about $ 40 for 60 tabs. pred is like $10 >for my scrip, and I have not had to pay for budisonde yet. Well as of >last year I have a medical plan now threw work, but the first two years >were hard. visa etc... to pay and I had to to stay healthy. The >pharmacy can not deny (in canada someone there pills) they kept an >account for me until I could pay interest free!! > >So I always owed, it's amazing what u can afford to when you have too!!! > > > > > > >------------------------------------------------------------------------ >Are you hogging all the fun? > >Friends tell friends about ONElist! >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 1999 Report Share Posted May 15, 1999 , There are other meds to be taken in conjunction with prednisone and Imuran. For example, if indicated, you could be told to take something like Prilosec and a diuretic. If that happens, be sure to ask your doctor to give you the least expensive generic drug. They tend to prescribe the newest and most costly. Some doctors will give you a large supply of samples, and that would be helpful. When I first went on the hormone patch (Climara) in Seattle, our insurance company wouldn't cover them. My gynecologist gave me a 6 month supply. One way or the other, if you can keep your AIH from progressing with meds, do what you have to do and look for the best way to cut the costs. Life is too precious to be measured in dollars. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 Heidi, You are an inspiration! Even tho I take the medication, I also seek a spiritual path through my 12 step program, also have my arts projects that I get completely lost in, garden (get lost in the plants too!), spend time playing with my dogs, and since 1986, have been journaling just about daily. You have hit the nail on the head with enjoying eash day to the fullest! It is about One Day at a Time for me - and it works! ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Hello Gretchen, I know I am young in ages 33, yet some things I have been through have taught me not to take anything for granted. I do enjoy my life and am very excited to get my daycare off and running. As of May 1st it will be starting officially!!! I can't wait!I will be taking children day and night and some weekends. I just knew I always wanted to be a teacher and now I am one. Yes, I think we all seek alternatives in how to live our lives. I do not do well with medication at all. It affects me in a very bad way, so I try not to take it. However, I empathisize with what some are going through and do not contradict how one chooses to live their lives as all of us are unique with different needs. Humanity needs to become our future and not our past. Journaling is a very productive way to allow our future generations to see where we have come from. Thank you. Heidi What great news about becoming a teacher at last, Heidi! I remember when you were still in school! Congratulations on achieving your goals! ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 The best approach I've found... animals. they always seem to sense when you're hurting and try their best to help you out. I could go into numerous stories, but I'll share just one for now. It was the middle of a NH Winter and in order to bring the horses in, we have to take them down an icy hill. I decided I could do it, so I was leading this big TB named down the hill. had extra energy that day because of the cold, so he was prancing and snorting around. Well I slipped going down the hill and fell right by his feet... If he had kept prancing, he would have stepped on me, but I swear, the second I lost my balance, he planted all four feet on the ground and stayed there until someone came to help me out. I also know that my cat can always tell when I'm upset... even when I'm on the phone from here (KY)... Whenever I can and am upset, Rascal comes over to my mom or my Dad whoevers on the phone and tries to rub up against the phone and purr. I talk to him on the phone and he purrs and rubs up against it. Anyway, thats more than one story, but animals are my medicine. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.