my introduction

[Guest guest]

Hello. My name is Ian, I am 42 married with 2 children and I

live in the UK. My family have a history CMT 1B. I am presently

waiting for my blood test results to confirm I have CMT. I have

been waiting 6 months which I think is fairly normal. In 1991

I completed the London Marathon in a time of around 3:30

running in aid of Muscular Dystrophy because I thought that was

what my father was suffering from. It was not until later that

I realised there was such a thing as CMT. I have been told that

I need knee cap replacement, I do not know if this is a good

thing for people with CMT. Slowly I have become less active and

suffer from a lot of tiredness and calf and toe cramp and

restless leg syndrome. I know it is not positive for me yet but

I think I have CMT. When it is confirmed I would like to do

something positive like Yoga or meditation something to keep

me active and positive. Many thanks,

Ian.