Guest guest Posted April 14, 2003 Report Share Posted April 14, 2003 Enter your vote today! A new poll has been created for the group: How do you feel about the CMT research being done? o I am excited about all the new, worldwide CMT research o I believe in my lifetime we will see the end of CMT! o The NT-3 research and individual/self injections sounds promising to me o I feel the potassium research needs to be broadened o The new researchc and treatment on pregnancy without passing on the CMT genes (PID) gives me hope o I feel there will be a big,new treatment for CMT in 2 to 4 years o I don't think I will see a cure in my lifetime, but there will be a cure in my children's lifetime o I feel more CMT research needs to be done and faster results produced o I would gladly participate in CMT research if I knew I would not get a placebo o I feel the research on a " CMT cocktail " of creatine monohydrate, lipoic acid and coenzyme Q10 sounds like the best bet o I feel the Curis development of sonic hedgehog protein in pill form will greatly benefit CMT o I would like to talk to the participants in the NT-3 research study; perhaps they could be on a panel of speakers at a CMT conference o I would like to participate in a CMT research project just for the experience and to help erradicate CMT o I would like to be part of a World CMT Database for research o I would participate in research only if there is a payment to me o I will gladly participate in research as a volunteer o I like the research updates and news posted at because it gives me hope o I do not understand what all the research projects are about and would like more information in simpler language I can understand o I feel much more fundraising needs to be done, but outside of the CMT community, so CMT disease can have the world's best researchers working for disease arrestment once and for all! o I would like to help the World CMT Research Database get started o I would like to participate in CMT research at a scientific center near me o I feel there will be new treatment/and or arrestment in 1-2 years o Other: Please post to To vote, please visit the following web page: /surveys?id=1066112 Note: Please do not reply to this message. Poll votes are not collected via email. To vote, you must go to the web site listed above. Thanks! Quote Link to comment Share on other sites More sharing options...
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