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Hello,

I am Mieke from the Netherlands.

I am 45 years old, merried and have no children, but I have 2 dogs

(whippet and italian greyhound).

I am not yet diagnosed with CMT II, but my father an 2 aunts do have

it.

When I am 9 I get tired with walking and they find a scolioses.

I've getting a backbrace and a gipsbed. I do have problems with

walking. At my 20 I get earringing, deafness, and dizzynes (vertigo)

at one side. (Ménière diseases). There is some dammage about a

brainnerve. A few years later I get problems with seying, everything

is moved the hole day (nystagmus). And the last years I get tingling

at my face at the same side and my backbone. And I get pain at my

back, neck,knee, ankle foot (tingling to) and I take a stick to

walking in the would, so I don't fel so easy. My toos dos'nt work

very well. And at my right hand i let things fall. And somtimes it

getting hurt.

In the morning i have the most energy.

And at night i must go out of my bed because i am going 3 a 4 times

to the toilet. And swimming is the only sport i can do.

I going to a doctor about 2 moths, but I would like to now if there

are more people who having this?

And should it be CMT II?

Thanks a lot for answering me,

Greetings Mieke.

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