Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Hello, I am Mieke from the Netherlands. I am 45 years old, merried and have no children, but I have 2 dogs (whippet and italian greyhound). I am not yet diagnosed with CMT II, but my father an 2 aunts do have it. When I am 9 I get tired with walking and they find a scolioses. I've getting a backbrace and a gipsbed. I do have problems with walking. At my 20 I get earringing, deafness, and dizzynes (vertigo) at one side. (Ménière diseases). There is some dammage about a brainnerve. A few years later I get problems with seying, everything is moved the hole day (nystagmus). And the last years I get tingling at my face at the same side and my backbone. And I get pain at my back, neck,knee, ankle foot (tingling to) and I take a stick to walking in the would, so I don't fel so easy. My toos dos'nt work very well. And at my right hand i let things fall. And somtimes it getting hurt. In the morning i have the most energy. And at night i must go out of my bed because i am going 3 a 4 times to the toilet. And swimming is the only sport i can do. I going to a doctor about 2 moths, but I would like to now if there are more people who having this? And should it be CMT II? Thanks a lot for answering me, Greetings Mieke. Quote Link to comment Share on other sites More sharing options...
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