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hello everyone,

my name is Joe I'm 25 and I live in Wisconsin. I was diagnosed

when I was 15. It would have been much sooner but my doctor as

a baby told my mother my feet would grow out just fine when she

voiced concern. He had no idea. My mother new well though as

her mother herself, and 2 of her 3 sisters are also all affected.

Myself and only 1 cousin that I know of are the only of their

children showing symptoms. Life has been fairly normal, except

for all of the " why are you so skinny man, don't you ever eat? "

comments growing up. And of course I enjoy being active and so

I get the cramps in my legs once and a while. The calluses on

my feet are like needles sometimes. Other than that all is

well. I look forward to meeting some great new people. And I

must also say it was nice to stumble accross groups of people

to relate with!

Regards,

Joe

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